Category Archives: Featured

Hearing aids expand 9-week-old boy’s world

Clockwise from bottom: Elijah Cook, born Jan. 2, mother Ahavah, sister Evelyn and father Jason (Photo courtesy of the Cook family)

Clockwise from bottom: Elijah Cook with mother Ahavah, sister Evelyn, 7, and father Jason. Elijah was born Jan. 2 with severe-profound sensorineural hearing loss. (Photo courtesy of the Cook family)

Jimmy Bellamy

After Ahavah Cook’s baby, Elijah, was diagnosed with profound hearing loss shortly after his birth, the Andover, Minn., mom thought she’d never hear sweet coos and sounds produced by her beautiful newborn.

Elijah Cook was born Jan. 2 at Mercy Hospital in Coon Rapids. Twelve hours later, he failed his newborn hearing screening. Nurses downplayed the result, reassuring Ahavah and husband Jason that it was common for babies to fail the first hearing test only to pass the 24-hour follow-up exam.

But that, and a third test with an audiologist, yielded the same result.

“We could see there was a good chance that he wouldn’t pass additional tests,” Ahavah said. Though she and Jason had been optimistic, the couple knew that hearing challenges were a possibility with their son. Both of their mothers and fathers are deaf, and Jason has no hearing in his left ear. “When Elijah came back (from the first test), we were expecting good news because we have almost a dozen nieces and nephews that have no hearing issues.”

The hearing aid Elijah wears in one of his ears, with a quarter to show scale

The hearing aid Elijah wears in and around one of his ears, with a quarter to show scale

After the three failed tests, the Cooks were referred to the developmental and rehabilitation program at Children’s Specialty Center, connected to Children’s – Minneapolis. There the Cooks met with Lori Johnson, AuD, for another hearing exam.

“We had a lot of time to ask questions,” Ahavah said, “and from that moment all of our worries went away.” Though the Cooks didn’t get the results they wanted, Ahavah said, they felt more knowledgeable about Elijah’s diagnosis, which is severe-profound sensorineural hearing loss. While it is likely genetic, upcoming tests will confirm that.

“Lori has been great. Overall, I give her a 20 out of 10,” Jason said. “She answered all of our questions and gave us more time than was allotted.”

On March 5, Johnson fit then-9-week-old Elijah with tiny hearing aids that allowed him to hear his mother — and the world — for the first time. The moment was captured on video.

“The first time I saw him blink, I had a lot of emotions,” Ahavah said. “I was trying really hard not to cry. I didn’t want him to see me cry. I was trying hard to keep it together and just talk to him.”

Since then, Elijah has been cooing, smiling and responding to the sounds made by his family, including big sister Evelyn, 7.

Elijah with his mother, Ahavah, shortly after his birth (Photo by Tres Belle Studio)

Elijah with his mother, Ahavah, shortly after his birth (Photo by Tres Belle Studio)

“The cooing is the big thing,” Jason said. “He wasn’t very talkative, but ever since he was fitted for his hearing aids he’s cooing more, he pays more attention.”

The goal for audiologists is to have infants with hearing loss fit with hearing aids when they’re a couple weeks or months old. If babies don’t pass their initial and follow-up screenings, and get referred to Children’s immediately, it’s common to be fit at 2 or 2½ months. Elijah was fitted early because of his family history and parents’ timely follow-up, Johnson said. The youngest child she has fit with hearing aids was 2 weeks old.

“The hard part with Elijah and the severity of his hearing loss is you really don’t know (if he can hear) until he can give you cues — looking around for sound, searching with his eyes,” Johnson said. “Computer technology lets us know if he should be able to hear sounds.

“Once he’s sitting up, at around 7-month age, we’ll know for certain what he’s hearing with the hearing aids on as he will be able to respond for a behavioral hearing test, and that’s true for any child with any degree of hearing loss.”

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USA TODAY / KARE 11: Baby hears mom for first time

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Elijah with hearing aids

Elijah was fit for hearing aids at a young age because of his family history and parents’ timely follow-up.

Early diagnosis and fitting combined with the technology and medical procedures available today — hearing aids, cochlear implants and bone conduction hearing aids — allows children with hearing loss a life with limitless possibilities.

Johnson said any child diagnosed with hearing loss and fit with hearing aids before 3 or 6 months can do anything as long as hearing-aid use is consistent.

“The big thing to take away in the case of Elijah and every other case is the earlier we can get diagnosis and family into early intervention and get started, you can have some really great outcomes,” she said. “But it’s really about the early detection piece of it.”

Jason and Ahavah said their experience growing up in the deaf community and seeing struggles will provide their son advantages. Many of their family members are fluent in American Sign Language (ASL) and are helping educate and sign to Elijah.

“Every parent wants the best for their kid. I just want to be able to equip him to handle life’s challenges,” Jason said. “I want to make sure he can overcome them and succeed.”

The Cooks encourage others with children born with hearing loss not to wait to do early invention and evaluation.

“Let other people help you because it’s overwhelming,” Ahavah said. “There are a lot of additional appointments. Get the help that you need.”

Elijah and big sister Evelyn

Elijah and big sister Evelyn

subscribe_blogSo how has that cooing been since Elijah received his hearing aids? It has been music to his mom’s ears.

“I kind of lost hope that I would get that milestone,” Ahavah said, “but it’s pretty cool that the hearing aid is able to help us bring it back.”

“That’s really the reason why I do my job; it’s for the parents who have children with a hearing loss and want their kids to develop speech and language,” Johnson said. “My goal is to give that to parents whenever possible.”

Children’s Hospitals and Clinics of Minnesota has audiology services through ear, nose, throat (ENT) and facial plastic surgery as well as the developmental rehabilitation program. Children’s has comprehensive care for hearing loss, from screenings to hearing-aid fittings to cochlear-implant surgery through follow-up audiology and speech pathology.

Advice for first-time marathoners from Coach Antonio Vega

Coach Antonio Vega of Zoom Performance will guide Team Superstars with an online training plan, weekly training tips and two group runs and presentations. (Photo courtesy of Antonio Vega)

Coach Antonio Vega of Zoom Performance will guide Team Superstars with an online training plan, weekly training tips and two group runs and presentations. (Photo courtesy of Antonio Vega)

Earlier this year, we launched our first-ever charity endurance program. With Coach Antonio Vega’s help, Children’s Team Superstars will participate in the Medtronic Twin Cities Marathon in 2015. Because many of our runners will be lining up for 26.2 miles for the first time, we asked Antonio a few questions.

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RELATED: Add a Children’s race to your calendar

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How do you start training for your first marathon?

Starting to train is always the hardest part of training. Keeping yourself accountable and motivated can be challenging when starting to train for a marathon. The best way to get started is to make a schedule of days and times when you will dedicate time to getting your run in. Find a friend who is willing to keep you company during your training. Keep your running fun by finding new places to run, join a running club or meeting a group of friends for a run and then going out for brunch, post-run.

Do you recommend doing any races while training and gearing up for a marathon?

Racing during marathon training is a great way to break up the monotony of training, and it’s a good time to gauge your fitness. I recommend adding in a couple of 5Ks and 10Ks before the marathon.

What is the best cross training?

Cross training is a great way to give your body additional time for recovery while still working your aerobic system. Any form of cross training that you enjoy is a value toward your marathon training.

What do you recommend for fueling before, during and after training runs?

Fueling can be one of the most important aspects of your marathon training. Having a good meal about two hours before a run is important. Keep with foods that you are used to and sit well in your stomach. During training runs, practice taking fluids and some form of nutrition. With the athletes with whom I work, we use a diluted sports drink and a gel during long runs. Post-run, it is just as important to replenish the calories that you lost during your long run. A 16-ounce glass of chocolate milk has the right balance of fats to protein and is a great way to replenish the calories you lost.

subscribe_blogTo stretch or not to stretch before and after runs?

I like to stretch after doing a run. This allows me to focus on areas that were tight during my run. I find that before doing a run I like to do more of a dynamic warm-up. A dynamic warm-up is a way to get your heart rate up and stretch out the muscles that you will be using during your run.

What is normal pain versus bad pain while running?

It is always tough to determine what is considered pain and what is just regular training soreness. My rule of thumb is if you start running and the pain starts to go away the more you warm up, this is usually a sign of training soreness. Training soreness is to be expected and not something to worry too much about. However, if you start to run and the pain stays the same or gets worse the more you run this can be the start of an injury, and it might be wise to take some time off.

There’s still time! Join Team Superstars by contacting Brady Gervais at [email protected] today!

Five Question Friday: Meet Kirsten Granberg

five_question_friday111As Child Life Week nears a close, we want to introduce you to Kirsten Granberg, one of our child life specialists, in this edition of Five Question Friday.

Child life specialist Kirsten Granberg has worked at Children's for two years.

Child life specialist Kirsten Granberg has worked at Children’s for two years.

What is your job at Children’s? Describe your role.

I am a child life specialist that works in Sedation and Procedural Services (SPS) at Children’s – Minneapolis. My role in this department is to provide developmentally appropriate education and procedural support to patients needing some type of sedation (or no sedation, if applicable), and hopefully help minimize their stress and increase their understanding of their medical experience. I work directly with the patient and family to find out how I can best offer support for his or her procedure, whether it be with the use of distraction (iSpy or sound books, iPad, guided imagery, bubbles, etc.) or parental coaching. The staff and I work closely to determine how we can all support the child and family in the best possible way as one cohesive team, and hopefully have the patient’s and family’s experience be a positive one.

How long have you worked at Children’s?

I have been at Children’s for two years. When I was hired, I worked as casual staff and at a contracted emergency department in Plymouth. I began working in SPS in fall 2014 when the Child Life position was created.

What do you love most about your job?

There are many aspects that I love about my job, but the one that always makes my heart happy is when I have the chance to do medical play with a patient before a procedure or scan. I love having a variety of medical items all over the floor where the child has the time to explore and manipulate the materials, ask questions and hopefully make sense of what is going to happen. Play is the universal language for children, so by incorporating something they are familiar with and tying in the medical aspect, children begin to gain mastery and a sense of control over the situation. How empowering for the child!

subscribe_blogWhen you were a kid, what did you want to be when you grew up?

When I was a kid, I wanted to be a teacher, nurse or veterinarian. All my dolls and stuffed animals had many visits to the “hospital,” where I would treat them and nurse them back to health. We went through lots of Band-Aids in my house. One of my favorite gifts was getting a cast and crutches for my doll!

What do you enjoy doing outside of work?

I probably shouldn’t admit that I watch way too much Netflix, so besides that, I love activities outdoors, singing in my car, finding new restaurants, attending different sports events and cheering for my beloved Green Bay Packers!

Raising kids with the Internet as a co-parent

Every generation faces unique challenges in life, this generation is no exception. The main difference for new parents in 2015 is the Internet — offering a mixed bag of benefits and burdens to the ancient art of parenting. (Pimonova / iStock illustration)

Every generation faces unique challenges in life, this generation is no exception. The main difference for new parents in 2015 is the Internet — offering a mixed bag of benefits and burdens to the ancient art of parenting. (Pimonova / iStock illustration)

Jeri Kayser

While visiting my marvelous niece and her exceptionally marvelous newborn baby, she mentioned that women who have already raised their children don’t know what it’s like to be a parent in today’s world. This struck me as interesting on many different levels.

I remember having that same exact thought after having my first child; it’s only after that baby has grown a bit or you’ve had your second or third child that you can look back on this phase of your parental evolution and see that the change is less about the world and more about you. You have changed. Your priorities, your worries, your decreased expectation that sleep is something you get to choose. The world is now more demanding but infinitely more fascinating and filled with an indescribable love. Plus, you get to learn some awesome multitasking skills!

subscribe_blogSo, is it different to raise a child now?

Every generation faces unique challenges in life, this generation is no exception. I would argue that the main difference for new parents in 2015 is the Internet — offering a mixed bag of benefits and burdens to the ancient art of parenting. It’s a great place to find bargains for the stroller you want or show you how to install the car seat. But it’s equally a never-ending source of unsolicited advice and distorted parent bragging that can make any rock-solid parent feel insecure, questioning if it’s true: “Should I really only feed my child blue foods?”

When I was raising kids and standing in the checkout lane at the grocery store, the magazines would shout from their rack all of the things I could be doing to be a better parent: “How to create the perfect birthday party!” “Fun and easy Halloween costumes you can make at home!” “Teach your child 12 languages before they enter kindergarten.” Every title offering a suggestion came with the subliminal message that failure to follow the advice was evidence that you weren’t up to this whole parenting thing. It’s hard not to feel insecure when you’re so motivated to be perfect for your obviously perfect child while residing in the imperfect package of a human being.

I could step away from the parenting magazines in the checkout line, maybe read up on what alien has married what celebrity, but you can’t really avoid the Internet. Those photos of your friends and relatives in gorgeously orchestrated family bliss are still going to pop up in your feed.

Sigh.

Mining the Internet for truly helpful information that empowers your parenting mojo instead of inviting in trolls who create chaos with your self- esteem requires some thoughtful navigation.  The Internet is great for advice about things that have easily verifiable facts, like “where can I find an indoor playground?” Questions that have long-term consequences like “how do I get my kids to get along with each other?” are best answered by the posse of people closest to you — your friends and family as well as professionals educated in the field of question.

Important parenting advice should be gathered from people important to you, people who are invested in you for the foreseeable future who will be around to be held accountable for their advice. Sift through that advice and take from it what seems right to you. Trust yourself. Yes, others have sailed the parenting seas, but this is your journey and you are the captain. Respecting yourself and recognizing there is no perfect parent smoothes the waters and makes the trip so much more fun!

Jeri Kayser is a child life specialist at Children’s Hospitals and Clinics of Minnesota.

Meet Katie

What Katie loves most about Children’s is the music therapy program.

What Katie loves most about Children’s is the music therapy program.

When exploring the impact of supporting a child’s tomorrow, we went straight to the source: our patients. We asked several to share how Children’s has played a role in their life today, and what they look forward to in their tomorrow. This is what we learned.

Q4_mighty_buttonName: Katie

Age: 5

Hometown: Eden Prairie

Katie was rushed from Abbott Northwestern Hospital to Children’s after she was born 15 weeks early. She only weighed a pound and had to stay in the neonatal intensive care unit (NICU) for 99 days. According to her mom, she is now happy, healthy and doing wonderfully.

When Katie grows up, she wants to be a dancer. She loves to dance.

What Katie loves most about Children’s is the music therapy program. Her brother, a member of our Youth Advisory Council (YAC), even helped to design a music cart for the music therapists at Children’s.

Define safe boundaries for kids and play

Encouraging the learning and exploration process will increase your child’s confidence and creativity, and defining safe boundaries and rules will keep you both happy. (iStock photo / Getty Images)

Encouraging the learning and exploration process will increase your child’s confidence and creativity, and defining safe boundaries and rules will keep you both happy. (iStock photo / Getty Images)

By Dex Tuttle

Not long ago, I watched my toddler daughter, Quinnlyn, as she played with her favorite blocks. She picked one up, stacked it carefully on top of another, and repeated until she had a tower four or five blocks high. Without warning, she pummeled the tower while sounding her signature high-pitched battle cry, sending blocks flying in all directions. She immediately seemed to regret not having a tower and ran to pick up the blocks to start the process over.

Young children begin to understand their world by cause-and-effect experimentation. Psychologist Jean Piaget was one of the first to put this concept into organized thought.

This behavior is apparent with my daughter: “If I stick my hand in the dog’s water dish, my shirt gets wet. This pleases me and I must do this each morning, preferably after mommy helps me put on a clean shirt.”

Then, something occurred to me as I watched Quinnlyn build and destroy her tower; there is a trigger missing in her young mind that could change her behavior: She does not understand consequence, the indirect product of an effect.

I began to notice this in her other activities as well. At dinnertime, we give her a plastic fork and spoon so she can work on her motor skills. If she’s unhappy with how dinner is going, she throws her fork and spoon on the floor in a fit of toddler rage. She is then immediately puzzled by how she’ll continue her meal now that her utensils are so far away.

Subscribe to MightyAs frustrating as toddler tantrums can sometimes be for parents, I’d love to be in my daughter’s shoes. Who wouldn’t want the satisfaction of taking all those dirty dishes that have been in the sink for two days and chucking them against the wall? That decision, of course, would be dangerous and reckless and I have no desire to clean up such a mess. And, with no dishes in the house, I’d be forced to take a toddler to the store to shop for breakable things; not a winning combination.

There’s an important lesson here for safety-minded parents: Kids will explore their environment in whatever way they can. It’s like the feeling you get when you find a $20 bill in the pocket of a pair of pants you haven’t worn in months, or when you discover the newest tool, gadget or fashion. For toddlers (and us adults), it’s fun finding new things and learning new skills; it’s motivating and creates a feeling of accomplishment. However, the cognitive skills of a toddler haven’t developed beyond that cause-effect understanding.

This is why we need to consider the environment in which our young children play. I recommend giving them plenty of space and opportunity to experiment without worry of the consequence:

  • Make sure stairs are blocked off securely and unsafe climbing hazards are eliminated; encourage kids to explore the space you define.
  • Create a space to explore free of choking hazards, potential poisons and breakable or valuable items; leave plenty of new objects for children to discover, and change the objects out when the kids seem to grow tired of them.
  • Allow children to fail at certain tasks; be encouraging and positive without intervening as they try again.
  • If possible, discuss their actions and consequences with them to help them understand the reason for your rules.

Encouraging the learning and exploration process will increase your child’s confidence and creativity, and defining safe boundaries and rules will keep you both happy.

At Children’s Hospitals and Clinics of Minnesota, we care for more pediatric emergency and trauma patients than any other health care system in our region, seeing about 90,000 kids each year between our St. Paul and Minneapolis hospitals. Children’s Hospital in Minneapolis is the area’s only Level I pediatric trauma center in a hospital dedicated to only kids, which means we offer the highest level of care to critically injured kids. When it’s critical, so is your choice – Children’s Level I Pediatric Trauma Center, Minneapolis.

Dex Tuttle is the injury prevention program coordinator at Children’s Hospitals and Clinics of Minnesota and the father of a curious and mobile toddler. He has a Master of Education degree from Penn State University.

Five Question Friday: Terrance Davis

Five Question FridayIt’s Friday, and what better way to celebrate the end of the week than with a Five Question Friday profile? Meet Terrance Davis, who works on our Environmental Services team within the Minneapolis Surgery department.

Terrance Davis has worked at Children's for 25 years.

Terrance Davis has worked at Children’s for 25 years.

How long have you worked at Children’s?

I have worked here for 25 years.

Describe your role.

I clean surgery rooms between cases and stock supplies.

Do you have a favorite memory from working at Children’s?

I have a few favorites:

  • The surgery staff surprised me with a 50th birthday celebration.
  • Each annual craft show, which is so much fun
  • Gathering for the Environmental Services Week events

What do you think make kids great?

I have a couple answers for this one. First, they can smile at you and make your entire day better. Second, they have great energy, which can be contagious.

What is one interesting fact about you?

I was married in Las Vegas at the top of the Stratosphere tower with local TV personality “Fancy Ray” McCloney standing with me as my best man.

Five Question Friday: Kelly Patnode

Five Question Friday

Meet Kelly Patnode, patient access specialist at our St. Paul hospital, who has a love for the Minnesota State Fair.

When she isn't working in our St. Paul hospital, Kelly Patnode enjoys reading and helping out at the Minnesota State Fair.

When she isn’t working in our St. Paul hospital, Kelly Patnode enjoys reading and helping out at the Minnesota State Fair.

How long have you worked at Children’s?

I have worked at Children’s in St. Paul for 36 years.

What drew you to Children’s?

I started in St. Paul when it was on “the hill” (across the highway from our current location) as a volunteer at the age of 13. I was a volunteer for four years. I went to school for medical office occupations, but there were no openings at that time. When I was talking to someone at Children’s, they said there was an opening for a health unit coordinator. I asked what that person did, and they explained that person works at the main desk on the floors. I asked if that was similar to a ward secretary, and they said yes. I said, “Well, I have done that job for four years, so I think I could do it!”

Subscribe to MightyWhat is a typical day like for you?

My typical day starts with making a coffee. It is just the right way to start of the day. I then clean and restart all the computers, restock supplies and then either sit at the emergency room desk and start answering the phone, make calls for the providers, put together a chart or break down a chart or start with registering patients who come to be seen in the ER.

What do you love most about your job?

Every day is a different day. What I did yesterday at my job may be totally different than the day before or today. If I can get a smile out of a patient and their parents, it just makes the day better.

What do you enjoy doing outside of work?

Usually I read books. But during the summertime I am busy because I also work at the Minnesota State Fair, selling box-office tickets for grandstand shows and pre-fair tickets. I have been working there for 38 years. So when I am not working at the hospital, I am at the fair. I am actually taking vacation from the hospital to work full time at the fair this year.

Children’s, Twin Cities Moms Blog host #MNvaxchat

Subscribe to MightyAugust is National Immunization Awareness Month, and Minnesota’s new immunization requirements take effect Sept. 1. With that and back-to-school mode under way, we’ll be co-hosting a Twitter chat with our friends at Twin Cities Moms Blog.

Join us for the live chat, using #MNvaxchat from 8-9 p.m. Monday, that will feature Patsy Stinchfield, PNP, director of Infection Prevention and Control and the Children’s Immunization Project at Children’s Hospitals and Clinics of Minnesota. Children’s and Twin Cities Moms Blog will be there, too. Participants who use #MNvaxchat in tweets during the live chat qualify for a chance to win a $50 Target gift card.

ALSO: Read the Children’s vaccinations blog archive on Mighty.

UPDATE: Participation strong, informative on #MNvaxchat

Red-Vested Rockstar: Lisa Zutz

Lisa Zutz is a volunteer at Children's.

Lisa Zutz is a volunteer at Children’s.

Lisa Zutz is an aspiring pediatric RN who currently works as a phlebotomist. She has volunteered on the inpatient units, in the sibling play area and, most recently, piloted a volunteer role in the lab, which has proved highly successful. What keeps Lisa coming back week after week? The positivity and bravery of our patients.

1. Why she rocks?

I got into volunteering because of its benefits; I believe that unpaid volunteers are kind of the “glue” that holds a community or even a hospital together. Volunteering makes me happy, and knowing that I am able to put a smile on a child’s face really makes my day. Volunteering at Children’s Hospital has brought so much fun and fulfillment to my life. I want to work as a nurse with children, and I feel that the skills I gain from volunteering will make me that much better of a nurse and a person.

2. What’s your favorite thing to do outside of volunteering?

Outside of volunteering, I keep pretty busy. I am very active and love to work out; whether it’s yoga, spin, or even a nice long run. Also, I spend a lot of time with my family.

3. Do you have any kids or pets of your own?

I do not have any kids, but once a week I babysit my two nieces, Chloe and Kinzi, ages 2 and 5. We have a blast together! I spend more time with my nieces than my actual friends. We enjoy going to the Maple Grove indoor maze, making cupcakes, playing outside and making projects. We definitely keep busy all day long. I also have a kitty. His name is Luigi, and I love him with all my heart. He is a beautiful mix: half-Siamese, half-Himalayan and loves to play and run around my condo.

Subscribe to Mighty4. If you could create a new candy bar, what would be in it and what would you name it?

I am not a lover of chocolate, but for everyone who is, I would make an ice cream bar loaded with caramel, pecans, rich chocolate and, of course, ice cream. I would call it “Caramel Delight,” and it would melt in your mouth!

5. Share a favorite volunteer experience or story.

I am not sure if I can choose a favorite; I believe every experience I have had at Children’s has made me into a better person. Each child is so different and unique that every experience has its own one-of-a-kind story. It is amazing to see how brave these kids truly are; they battle so hard and are so positive despite being sick. Life is so fragile, and when you see such young children sick, you realize how life should not be taken for granted. Volunteering is so rewarding!