Nolan Luther was diagnosed with rhabdomyosarcoma, a cancerous tumor of the muscles, on June 3, 2013.
He finished chemo in March and will have quarterly scans for the next two years before they become less frequent. He may undergo surgery to help reanimate the left side of his face. The tumor damaged Nolan’s facial nerve.
With cancer in the past, Nolan is ready for kindergarten at Sioux Trail Elementary School in Burnsville.
“Nolan is very curious. He asks about 400 questions a day,” his parents, Tara and Kevin, said. “He is a sensitive kid and shy at first, but once he is comfortable he is incredibly confident. Towards the end of treatment, Nolan would often direct his nurses on what type of drugs he should have and how they should administer his shots and access his port.”
School won’t be the only thing on his mind. Nolan loves soccer and gymnastics. This summer, he has been able to do more of both activities. He also is good with Legos. The Luthers recently put together a 1,200-piece Millennium Falcon from “Star Wars,” and Nolan did the majority of it by himself.
“The care Nolan received at Children’s was really top notch,” Kevin said. “We felt so confident and comfortable that Dr. Kris Ann Schultz was doing everything possible to ensure the best outcome for Nolan. We appreciated the long-term focus and proactive attention that Children’s provided. They started physical therapy early to give Nolan the best chance for a quick physical recovery.
“As crazy as it sounds to some people, we consider ourselves lucky. Maybe not in the normal sense, but lucky that we fell into this journey at Children’s and we found ourselves with an amazing team of specialists – not just the doctors, but nurses, physical therapists, social workers and child life specialists – that were able to provide fantastic care and support. We are fortunate to benefit from the experience of patients who have gone before us and the research that has gone into pediatric cancers.”