Category Archives: Philanthropy

Advice for first-time marathoners from Coach Antonio Vega

Coach Antonio Vega of Zoom Performance will guide Team Superstars with an online training plan, weekly training tips and two group runs and presentations. (Photo courtesy of Antonio Vega)

Coach Antonio Vega of Zoom Performance will guide Team Superstars with an online training plan, weekly training tips and two group runs and presentations. (Photo courtesy of Antonio Vega)

Earlier this year, we launched our first-ever charity endurance program. With Coach Antonio Vega’s help, Children’s Team Superstars will participate in the Medtronic Twin Cities Marathon in 2015. Because many of our runners will be lining up for 26.2 miles for the first time, we asked Antonio a few questions.

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RELATED: Add a Children’s race to your calendar

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How do you start training for your first marathon?

Starting to train is always the hardest part of training. Keeping yourself accountable and motivated can be challenging when starting to train for a marathon. The best way to get started is to make a schedule of days and times when you will dedicate time to getting your run in. Find a friend who is willing to keep you company during your training. Keep your running fun by finding new places to run, join a running club or meeting a group of friends for a run and then going out for brunch, post-run.

Do you recommend doing any races while training and gearing up for a marathon?

Racing during marathon training is a great way to break up the monotony of training, and it’s a good time to gauge your fitness. I recommend adding in a couple of 5Ks and 10Ks before the marathon.

What is the best cross training?

Cross training is a great way to give your body additional time for recovery while still working your aerobic system. Any form of cross training that you enjoy is a value toward your marathon training.

What do you recommend for fueling before, during and after training runs?

Fueling can be one of the most important aspects of your marathon training. Having a good meal about two hours before a run is important. Keep with foods that you are used to and sit well in your stomach. During training runs, practice taking fluids and some form of nutrition. With the athletes with whom I work, we use a diluted sports drink and a gel during long runs. Post-run, it is just as important to replenish the calories that you lost during your long run. A 16-ounce glass of chocolate milk has the right balance of fats to protein and is a great way to replenish the calories you lost.

subscribe_blogTo stretch or not to stretch before and after runs?

I like to stretch after doing a run. This allows me to focus on areas that were tight during my run. I find that before doing a run I like to do more of a dynamic warm-up. A dynamic warm-up is a way to get your heart rate up and stretch out the muscles that you will be using during your run.

What is normal pain versus bad pain while running?

It is always tough to determine what is considered pain and what is just regular training soreness. My rule of thumb is if you start running and the pain starts to go away the more you warm up, this is usually a sign of training soreness. Training soreness is to be expected and not something to worry too much about. However, if you start to run and the pain stays the same or gets worse the more you run this can be the start of an injury, and it might be wise to take some time off.

There’s still time! Join Team Superstars by contacting Brady Gervais at [email protected] today!

Woman to honor late grandson at Twin Cities Marathon

Team Superstars' Robyn Steinbrueck is running for her grandson, Rowan Peterson, who died March 2012. (Photo courtesy of Robyn Steinbrueck)

Team Superstars’ Robyn Steinbrueck is running the Medtronic Twin Cities Marathon for her grandson, Rowan Peterson (pictured), who died March 2012. (Photo courtesy of Robyn Steinbrueck)

This is the first in a regular series about Team Superstars runners who will participate in the Medtronic Twin Cities Marathon on Oct. 4 on behalf of Children’s inaugural charity running team. Learn more.

Robyn Steinbrueck

What do you think of when you hear “Children’s Hospitals and Clinics of Minnesota”? To me, Children’s is a place that played a beautiful and integral part of my family’s life in March 2012.

It was a Sunday I will never forget. I was having my lunch when the phone rang. My daughter, Katie, was calling to tell me news no one wants to hear. My 21-month-old grandson, Rowan, had gone into cardiac arrest. After 35 minutes of the paramedics trying to revive him, they got his heart beating, and he was on his way to North Memorial Medical Center. After frantically driving to pick up his twin brothers, Josh and Holden, we learned that Rowan had been transferred to Children’s. I knew immediately that no matter the outcome, he would receive the best care.

As the day transpired, and we arrived at the hospital, we were hopeful but realistic. Being without oxygen or a heartbeat for that long could not be good. Our worst fears were realized when the doctors told us that indeed Rowan’s brain was badly damaged from the oxygen deprivation. The doctors and nurses were absolutely fabulous as they walked my daughter and her husband, Taylor, through the last day of Rowan’s life. They were treated with incredible compassion and respect as they made decisions that no young parents should ever have to make. As each family member came to say goodbye to Rowan, we were shown such love by the staff, especially the nurses. Their final gift to Rowan was a beautiful quilt that his body was wrapped in after he died. Even in death, the thoughtfulness of Children’s shined through. Although our family was only at Children’s for a little more than a day, the memory of their care will stay with me for a lifetime.

I began running in 2002, so after Rowan’s death, it was good therapy for me to hit the pavement. As the miles passed under my feet, I found great comfort and the “road was a good listener.” Knowing that I had increased my mileage as a way to deal with the grief and its aftermath, my brother encouraged me to run a half-marathon with him. I thought that there was no way I could do it, but I am very competitive, so I took him up on the offer. I ran two half-marathons that year, and I loved every minute of it!

Grief comes in waves, and it really hit me hard in late 2013, so I increased my running. Somewhere in all those miles, I decided that I wanted to run the Medtronic Twin Cities Marathon. Fast forward to October 2014, and as I was lining up in downtown Minneapolis, I looked up and saw Hennepin County Medical Center, the hospital where Rowan was born. Tears filled my eyes as I realized that I was actually doing this and that I had made it through this challenge. So on Oct. 5, I completed my first marathon! To say it was one of the best days of my life would be an understatement. The crowds, the course, the weather and my family all came together that day. I knew as soon as I crossed the finish line that I would do it again.

subscribe_blogOne of the most inspirational parts of the Twin Cities Marathon is the charity teams. Not only do they support each other through training and raise funds for their cause, but they are there for each other throughout the race. I knew that I had to be part of a team. When I heard about Team Superstars, there was no doubt in my mind that this was for me; what a great way to honor the memory of my grandson, Rowan, and to show support for Children’s.

So, my “Team Superstars” adventure begins. I am excited to raise funds and to be part of an awesome team. I look forward with great anticipation to Oct. 4, when I will run the Twin Cities Marathon as part of Team Superstars. I know that Rowan’s memory and spirit of Children’s will be with me the entire way.

Children’s pain and palliative care clinic opens new doors

The Kiran Stordalen and Horst Rechelbacher Pediatric Pain, Palliative and Integrative Medicine Clinic opened Jan. 6 at Children's – Minneapolis.

The Kiran Stordalen and Horst Rechelbacher Pediatric Pain, Palliative and Integrative Medicine Clinic opened Jan. 6 at Children’s – Minneapolis.

With its work in the treatment of pediatric pain, Children’s Hospitals and Clinics of Minnesota opens new doors, literally.

Ten years after the start of an inpatient pain and palliative program, and nine years after the opening of Children’s original pain clinic, the Kiran Stordalen and Horst Rechelbacher Pediatric Pain, Palliative and Integrative Medicine Clinic, located on the fifth floor of the Tower building at Children’s – Minneapolis, celebrates its grand opening this month.

The 10,000-square-foot clinic, the first of its kind in the world, combines Children’s pain medicine, palliative care and integrative medicine services into a single space, creating a state-of-the-art healing environment for kids and their families. The clinic, named in recognition of the lead gift from Horst Rechelbacher, the late cosmetics entrepreneur, and his wife and business partner, Kiran Stordelan, furthers Children’s ability to minimize pain for patients and make their treatment, healing or hospice experience as comfortable, pleasant and peaceful as possible.

Stefan Friedrichsdorf, MD (left), is medical director of Children’s pain clinic.

Stefan Friedrichsdorf, MD (left), is medical director of Children’s pain clinic.

One of the clinic’s main features is the Snoezelen room, a controlled multisensory environment that combines sounds, scents, colors and lighting effects to stimulate and soothe patients, including those who are nonverbal, blind, hearing impaired or have cognitive delays.

Other features include a ceiling canopy of birch leaves comprised of more than 500 photos; sound-absorptive ceilings and padded, resilient floors that reduce the sound of footsteps and increase comfort for patients and clinicians; lighting designed to create a restful, intimate environment; and an interactive waterfall designed by Dr. Clement Shimizu, a former Children’s patient.

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VIDEO: Children’s Stefan Friedrichsdorf, MD, talks about palliative care.

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Images of flowers, plants and landscapes unique to Minnesota are incorporated throughout the clinic. The lobby features local artwork from nature photographer Craig Blacklock, whose images include larger-than-life birth leaves and bark, stones and plants. The sound is that of a natural environment: wind, water and bird calls.

subscribe_blogA massage room staffed by nationally certified massage therapists provides a space for CranioSacral Therapy, a gentle, hands-on approach that releases tensions deep in the body to relieve pain and improve health.

A gym and rehabilitation area with a treadmill, swing, video game system and other equipment is used to help encourage kids with chronic pain to move and exercise.

Expansion plans for the clinic, led by medical director Stefan Friedrichsdorf, MD, add acupuncture and day-treatment services for groups of children with chronic pain, and more massage therapists.

The Kiran Stordalen and Horst Rechelbacher Pediatric Pain, Palliative and Integrative Medicine Clinic officially opened Jan. 6.

PHOTO GALLERY: The Kiran Stordalen and Horst Rechelbacher Pediatric Pain, Palliative and Integrative Medicine Clinic opened Jan. 6, 2015, at Children’s Hospitals and Clinics of Minnesota’s Minneapolis campus.

Funds from triathlon to benefit Children’s-attended camp

Victory In Progress (VIP) is a newly renamed camp that has helped kids, including Children's patients, with cancer or blood disorders for 31 years. (Photo courtesy of CycleHealth)

Victory In Progress (VIP) is a newly renamed camp that has helped kids, including Children’s patients, with cancer or blood disorders for 31 years. (Photo courtesy of CycleHealth)

Q4_mighty_buttonCycleHealth, a Twin Cities-based nonprofit that raised more than $62,000 for Children’s Hospitals and Clinics of Minnesota with its first-ever BreakAway Kids Tri (triathlon) in August, announced that funds raised from its 2015 event will benefit the newly renamed Victory In Progress (VIP), a camp for kids, including Children’s patients, with cancer or blood disorders.

The camp, which had lost its previous source of funding, was chosen in a unanimous vote by CycleHealth’s Kid Advisory Panel. Money raised at the BreakAway Kids Tri will cover the costs of sending more than 100 kids to the camp, which has helped kids for 31 years.

The second annual BreakAway Kids Tri takes place Aug. 22, 2015, at Lake Elmo Park Reserve.

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Meet Madeline

Madeline

What Madeline loves most about Children’s is that they care for her.

When exploring the impact of supporting a child’s tomorrow, we went straight to the source: our patients. We asked several to share how Children’s has played a role in their life today, and what they look forward to in their tomorrow. This is what we learned.

Q4_mighty_buttonName: Madeline

Age: 7

Hometown: Elk River

Madeline has received care from Children’s for heart surgery and C. difficile, a bacterial infection.

When Madeline grows up, she wants to be a house designer and build a house for her parents.

What Madeline loves most about Children’s is that they care for her.

Meet Aden

Aden

What Aden loves about Children’s is his nurse, Linda, who he says is “the best nurse in the nurse history!”

When exploring the impact of supporting a child’s tomorrow, we went straight to the source: our patients. We asked several to share how Children’s has played a role in their life today, and what they look forward to in their tomorrow. This is what we learned.

Q4_mighty_buttonName: Aden

Age: 8

Hometown: Eagan

Aden came to Children’s due to inflammation on his pancreas. He had a cyst removed from his bile duct.

When Aden grows up, he wants to be a doctor because he enjoys school.

What Aden loves about Children’s is his nurse, Linda, who he says is “the best nurse in the nurse history!”

Making of “Meet Abbey, future ballerina”

We get to work with amazing kids like Abbey every day at Children’s Hospitals and Clinics of Minnesota. And each one has a dream that’s worth reaching.

The concept of the “Give today. Support tomorrows.” fundraising campaign is built on the spirit that every child has the chance to realize his or her hopes and dreams.

Take a behind-the-scenes look at the making of the commercial featuring Abbey, the future ballerina, and her family.

You can help our kids get to “when I grow up.” Give today. Support tomorrows.

Making of “Meet Abbey, future ballerina” from Children’s of Minnesota on Vimeo.

30-second commercial:

Meet Abbey, future ballerina from Children’s of Minnesota on Vimeo.

Meet John

When John grows up, he wants to be a hockey player.

When John grows up, he wants to be a hockey player.

When exploring the impact of supporting a child’s tomorrow, we went straight to the source: our patients. We asked several to share how Children’s has played a role in their life today, and what they look forward to in their tomorrow. This is what we learned.

Q4_mighty_buttonName: John

Age: 8

Hometown: Hastings

John was referred to Children’s, where he and his family learned he had stage IV advanced neuroblastoma. He has undergone chemotherapy, surgeries, radiation, a stem cell transplant, antibody therapy and now is participating in the difluoromethylornithine (DFMO) trial.

When John grows up, he wants to be a hockey player. Maybe even for the Minnesota Wild! Go, Wild!

No child loves being in the hospital, but when John is at Children’s, he loves watching The Dude on Channel 13.

Meet Sam

Sam came to Children’s because of hypoplastic left heart (HLH) syndrome and has undergone four open-heart surgeries to help reroute it.

Sam came to Children’s because of hypoplastic left heart (HLH) syndrome and has undergone four open-heart surgeries to help reroute it.

When exploring the impact of supporting a child’s tomorrow, we went straight to the source: our patients. We asked several to share how Children’s has played a role in their life today, and what they look forward to in their tomorrow. This is what we learned.

Q4_mighty_buttonName: Sam

Age: 3

Hometown: Litchfield

Sam came to Children’s because of hypoplastic left heart (HLH) syndrome and has undergone four open-heart surgeries to help reroute it.

When Sam grows up, he wants to build parks because he loves playing in parks.

When at Children’s, Sam loves “all of the train toys they let me play with.”

Sam, 3

Sam, 3

Father of cystic fibrosis patient plans concert, silent auction for Children’s

Edison Hopper was born with cystic fibrosis. (Amy Best / Amy Colleen Photography)

Edison Hopper was born with cystic fibrosis. (Amy Best / Amy Colleen Photography)

If you asked Charlie Hopper if the birth of his son was hard, you’d be off. Way off.

“To say it was difficult would be inaccurate,” Hopper said. “Any time you’re confronted with something your child has that could shorten his life shifts your perspective. We’ve done our best to take his diagnosis in stride, and the help of the team at Children’s has made that possible.”

A week after Edison Hopper was born last year, he was diagnosed with cystic fibrosis (CF). He has been treated at Children’s Hospitals and Clinics of Minnesota ever since. It was a diagnosis that will forever impact the Hopper family. Parents Charlie and Becky have not only accepted it but also pledged to help other kids like Edison and all kids cared for by Children’s.

CF is a life-threatening genetic disease that primarily affects the lungs and digestive system. A defective gene and its protein product cause the body to produce unusually thick, sticky mucus. It clogs the lungs and leads to life-threatening lung infections, as well as obstructs the pancreas and stops natural enzymes from helping the body break down food and absorb vital nutrients.

After Becky became pregnant with Edison, she learned she was a CF carrier. As a result, Charlie was tested and also found to be a carrier. When both parents are carriers, children have a 1-in-4 chance of having CF. It wasn’t until after Edison was born that they learned his diagnosis.

“Emotionally, it was difficult after Edison was born, but we got to a point where everything leveled out, and it got easier and easier. We don’t know any different,” Hopper said.

Edison receives daily treatment. He takes 40,000 units of enzymes with every meal to help him maintain body weight, Hopper said. He uses a nebulizer twice a day and wears a vest during treatment to help loosen the mucus in his lungs.

He visits Children’s, specifically Dr. Brooke Moore at Children’s Respiratory and Critical Care Specialists (CRCCS) every three months for checkups. He does an annual visit with his whole CF team (doctor, nurse, dietitian, social worker, and respiratory therapist). To date, he has been healthy and hasn’t once been hospitalized.

Since Edison was born, there have been many promising developments for people with his diagnosis. Life expectancy on average for a person with cystic fibrosis is just over 37 years. Kids born today with it should live into their 50s, on average, Hopper has learned.

Q4_mighty_button“Part of why CF has advanced is because of places like Children’s,” he said.

Charlie and Becky are expecting their second child next year. Because they’re both carriers of the defective gene, their next child could have cystic fibrosis, too.

“We obviously don’t want our next child to have CF,” Hopper said. “But in the event our unborn son has CF, we’ll know how to manage it.”

Hopper wants to raise $15,000 yet this year for Children’s in honor of his son and the thousands of other kids for whom Children’s cares.

“Everything that Children’s represents is something bigger than us as individuals,” Hopper said. “They go above and beyond.”

To help raise funds for Children’s, Hopper has organized a benefit concert, featuring national touring band Blitzen Trapper at the Fine Line Music Café on Dec. 12 presented by 89.3 The Current and McTerry Music. Local standouts Farewell Milwaukee, Bigtree Bonsai and Old Desert Road will also perform. Tickets are $25 in advance, $30 at the door and $50 for VIP (balcony access and $20 bar tab); doors open for the concert at 7 p.m. Tickets are selling fast and can be purchased here.

There will be a pre-event silent auction sponsored by IPR directly next door to the Fine Line at 300 N. First Ave. from 4-7 p.m., featuring live acoustic music by local musicians David and Zach Young (Down and Above, Going to the Sun) and Ray Smart (The Attley Project, Meridian Incident). Admission to that event is $10 and includes free food and drinks, as well as two complimentary raffle tickets for prizes to be given away after the concert at the Fine Line (need not be present to win). Tickets can be purchased here. People with tickets to the concert will be admitted free. If you cannot attend either event but want to support the cause, give today.