For Patients/Families

Resources and Educational Materials

Patient/Family Education Materials by Category

This section contains broad-ranging information Children's Hospitals & Clinics has developed about pediatric medicine. Here you will find plain talk about medical conditions or procedures, first aid, and the like. Many topics have illustrations and detailed instructions about how to provide care at home, and when to call for medical advice. Some topics offer links to Hmong, Somali, and Spanish versions.

The information in this section duplicates information given to the parents of Children's patients during their child's care in one of the hospitals or clinics.

This section has medical information, not medical advice. If you or your child has a health problem, contact your clinic. Use these materials only under the guidance of your child's health care provider.

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Home Care Procedures

After a Urinary Catheter:  (Hmong, Spanish)  Caring for a child after a urinary catheter is taken out.
Antegrade Continence Enema (ACE): Irrigation:  How to give enemas to a child with a surgically created "ACE" tube.
See Also: Antegrade Continence Enema (ACE): Surgery
Asthma Booklet:  Information on how to care for asthma at home.
Asthma Inhalers:  (Hmong, Somali, Spanish)  Inhalers must be used correctly to be effective. Step-by-step explanation of how to use an inhaler with a spacer.
See Also: Asthma, Asthma Medicines, Bronchodilators (Long-acting Inhaled), Bronchodilators (Quick-acting Inhaled), Corticosteroids (Inhaled), Nebulizer Treatments, Peak Flow Meter
Asthma Inhalers Video:  (Spanish, Spanish)  Video demonstration of how to use an inhaler (English version).
See Also: Anti-Inflammatory Medicines (inhaled), Asthma, Asthma Medicines, Asthma trigger control, Bronchiolitis, Bronchodilators (Quick-acting Inhaled), Inhalers, Peak Flow Meter
Asthma Nebulizer:  (Hmong, Somali, Spanish)  Step-by-step guide to giving a nebulizer treatment and caring for the nebulizer.
See Also: Anti-Inflammatory Medicines (inhaled), Asthma, Asthma Medicines, Asthma trigger control, Bronchiolitis, Bronchodilators (Quick-acting Inhaled), Inhalers, Peak Flow Meter
Asthma Poster:  (Somali, Spanish)  Overview of Asthma, including what it is, medications, and action plan.
See Also: Anti-Inflammatory Medicines (inhaled), Asthma, Asthma Medicines, Asthma trigger control, Bronchiolitis, Bronchodilators (Quick-acting Inhaled), Inhalers, Peak Flow Meter
Bleeding Disorder: Nosebleed Treatment:  (Spanish)  How to stop a nosebleed and when to call for help.
See Also: Aminocaproic Acid (Amicar), Dental Care with a Bleeding Disorder, Desmopressin (DDAVP) for Bleeding Disorders, Factor Concentrate at Home, Mouth Bleeding with a Bleeding Disorder
Blood Glucose Testing:  How to take a sample of blood from a fingertip and test it for glucose (sugar).
See Also: Hypoglycemia in Babies, Injections (subcutaneous)
Blood Pressure Measurement:  How to measure your child's blood pressure, using either an automatic or a manual cuff.
BMI - Body Mass Index: Tips for Healthier Living:  (Spanish)  Offers information about body mass index (BMI), along with strategies on maintaining a healthy weight.
Calming Activities: Home Program:  (Hmong, Spanish)  
Catheterizing a Boy (Intermittent):  (Spanish)  How to help your child drain the bladder using a tube.
Catheterizing a Girl (Intermittent):  (Spanish)  How to help your child drain the bladder using a tube.
Central Venous Catheter: Care at Home:  (Spanish)  A tube inserted into a large vein to give medicines or fluids and take blood samples.
See Also: Intravenous Therapy
Chemotherapy (Outpatient): Cyclophosphamide:  What to watch for and what to do at home after outpatient chemotherapy.
See Also: Cyclophosphamide (Cytoxan)
Chemotherapy at Home (IV push):  (Spanish)  Step by step instructions for giving chemotherapy at home by the IV push method.
See Also: Central Venous Catheter: Care at Home
Colostomy: Care at Home:  Colostomy care at home, including site care and information on emptying the pouch.
Dental Care with a Bleeding Disorder:  What to do when dental work is planned for a child with a bleeding disorder.
See Also: Aminocaproic Acid (Amicar), Desmopressin (DDAVP) for Bleeding Disorders, Factor Concentrate at Home, Mouth Bleeding with a Bleeding Disorder, Nosebleed Treatment with a Bleeding Disorder
EZ-On Modified Vest Model #101M2 (E-Z-ON Products, Inc.):  Information on how to install the E-Z-On Vest Model #101M2 from the manufacturer.
EZ-On Modified Vest Model #M203 (E-Z-ON Products, Inc.):  Information on how to install the E-Z-On Vest Model #M203 from the manufacturer.
Factor Concentrate at Home:  (Spanish)  Step-by-step instructions for giving factor by IV at home.
See Also: Aminocaproic Acid (Amicar), Desmopressin (DDAVP) for Bleeding Disorders, Desmopressin (Stimate), Head Injury with Bleeding Disorders, Tonsillectomy and/or Adenoidectomy (with a Bleeding Disorder), Tranexamic Acid
Fall Prevention at Children's:  
Fall Prevention at Home:  Lists medical situations in which falls are more likely at home, and ways to prevent them.
See Also: Crutches, Oxygen Safety at Home
Fecal Pouch Emptying:  When and how to empty your child's stool pouch.
See Also: Pouch Change: One Piece, Pouch Change: Two Piece (Using Newborn Pouch and Wafer)
Gastrostomy Care: G-J tube:  Information on how to care for gastrostomy at home.
Gastrostomy Care: G-tube:  Information on how to care for gastrostomy at home.
Home Monitoring Program - Cardiac:  Information about the cardiac home monitoring program designed for babies with single ventricular physiology.
Ileostomy: Care at Home:  Ileostomy care at home, including site care and information on emptying the pouch.
Immunizations for Children with Bleeding Disorders:  Information for clinic staff and parents on how to prevent bleeding after immunizations.
See Also: Helping Children Cope with Medical Procedures
Implanted Port: Care at Home:  (Hmong, Spanish)  Home care for a child with a venous access device.
See Also: Anesthetic Cream (EMLA; LMX4), Pain in Children and Adolescents, Intravenous Therapy
Inhalers:  (Hmong, Somali, Spanish)  Inhalers must be used correctly to be effective. Step-by-step explanation of how to use an inhaler with a spacer.
See Also: Asthma, Asthma Medicines, Bronchodilators (Long-acting Inhaled), Bronchodilators (Quick-acting Inhaled), Corticosteroids (Inhaled), Nebulizer Treatments, Peak Flow Meter
Injections (intramuscular):  Step by step instructions for giving an injection into the muscle.
Injections (subcutaneous):  (Hmong, Spanish)  Step by step instructions for giving an injection just under the skin.
Insuflon (indwelling subcutaneous catheter) at home:  How to give injections through a tube inserted under the skin.
IV Medicines at Home: Eclipse Homepump:  Step-by-step instructions for using the Eclipse Homepump.
IV Medicines at Home: Excelsior Syringe Pump:  Step-by-step instructions for using the Excelsior Syringe Pump
IV Medicines at Home: IV Push Method:  (Hmong, Spanish)  Step-by-step instructions.
See Also: IV Medicines: Preparing at Home
IV Medicines: Preparing at Home:  (Hmong, Spanish)  How to draw up and mix IV medicines: step-by-step instructions.
See Also: IV Medicines at Home: IV Push Method
Mouth Bleeding with a Bleeding Disorder:  (Spanish)  How to handle mouth bleeding; when to call for help.
See Also: Aminocaproic Acid (Amicar), Dental Care with a Bleeding Disorder, Nosebleed Treatment with a Bleeding Disorder
Nasogastric Tube Feeding:  (Spanish)  How to feed a child using a tube from the nose into the stomach: step-by-step instructions.
Nebulizer Treatments:  (Hmong, Somali, Spanish)  Step-by-step guide to giving a nebulizer treatment and caring for the nebulizer.
See Also: Anti-Inflammatory Medicines (inhaled), Asthma, Asthma Medicines, Asthma trigger control, Bronchiolitis, Bronchodilators (Quick-acting Inhaled), Inhalers, Peak Flow Meter
Oncology Caregiver Education Tool:  Describes what you need to know about medicines to give them safely; includes a reminder chart.
Oxygen Safety at Home:  (Spanish)  How to use oxygen equipment correctly to prevent fire and injuries.
Peak Flow Meter:  (Hmong, Spanish)  Step-by-step explanation of how to use a peak flow meter to check how well the lungs are working.
See Also: Asthma, Asthma Medicines, Asthma trigger control, Allergy Medicines, Inhalers, Nebulizer Treatments
Peripheral IV: Care at Home:  Step-by-step instructions for handling a peripheral IV; includes problem-solving chart.
See Also: Intravenous Therapy
Peripherally Inserted Central Catheter: Care at Home:  (Spanish)  Step-by-step instructions for handling a "PICC line"; includes problem-solving chart.
See Also: Intravenous Therapy
Peripherally Inserted Central Catheter: Insertion Information:  Information on PICC line insertsion, including CLABSI and infection prevention information.
See Also: Intravenous Therapy
Pouch Change: One Piece:  When and how to change your child's stool pouch.
See Also: Fecal Pouch Emptying, Pouch Change: Two Piece (Using Newborn Pouch and Wafer)
Pouch Change: Two Piece (Using Newborn Pouch and Wafer):  When and how to change your child's stool pouch with a separate skin barrier.
See Also: Fecal Pouch Emptying, Pouch Change: One Piece
Pressure Sores: Prevention:  What causes pressure sores, and how to prevent them.
Sleep - Home Program:  
Sleep: Home program:  
Smoking - Quitting Tobacco Products:  Offers information and resources for individuals interested in quitting smoking or other tobacco products.
Spica Cast:  (Hmong)  What to expect; how to prevent problems and ease discomfort for a child in a lower-body cast.
Suctioning:  (Spanish)  Removing mucus and fluids from the nose, mouth, or throat: when and how to do it.
Total Parenteral Nutrition at Home using the CADD Pump:  Step-by-step instructions for feeding your child by TPN infusion.
See Also: Central Venous Catheter: Care at Home
Tracheostomy: A Guide for Care at Home:  What to expect when your child needs a tracheostomy tube to make breathing easier.
See Also: Pain in Children and Adolescents, Pain in Infants, Anesthesia: Questions and Answers, Post-anesthesia Care Unit
Urinary Catheter (Indwelling): Care at Home:  (Spanish)  Caring for a child with a tube placed into the bladder to drain urine.
See Also: Urinary Catheter Irrigation, After a Urinary Catheter
Urinary Catheter Irrigation:  (Spanish)  How to open a urinary catheter that is plugged.
See Also: Urinary Catheter (Indwelling): Care at Home
Urostomy: Care at Home:  Urostomy care at home, including site care and information on emptying the pouch.