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Down Syndrome - Locations and contact information
Planning to visit us? Get all the information you need to get to our location and contact us.
Families: To make an appointment at the location nearest you, call 612-813-7240 Monday through Friday, 8:00 a.m.–4:30 p.m.
Children's – Minneapolis
2530 Chicago Ave. South, Suite 390 and 410
Minneapolis, MN 55404
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Children's – St. Paul
345 N. Smith Ave., Suite 3rd floor
St. Paul, MN 55102
See a map.
Down Syndrome - What to expect during your visit
When it comes to our care, kids set the pace.
Children's Hospitals and Clinics of Minnesota is committed to providing a supportive, patient-centered setting for children with Down syndrome and their families. We're here for you whether you need help with a complex medical issue or simply have a question or two.
For your family's convenience, we see children at our Minneapolis and St. Paul clinics and work with the staff of both hospitals to coordinate inpatient care.
Help where and when you need it
There are several ways your child might be referred to the Down syndrome clinic:
- Nursery or hospital stay. If you plan to have your baby at , we'll be there! We and our neonatology team work closely to meet your child's needs from the first minutes of life. We also see hospitalized infants and children with Down syndrome to help coordinate their care.
- Prenatal visits. If your baby is diagnosed with Down syndrome prenatally, we'll help you prepare for your special delivery. We can also coordinate referrals to a perinatologist (obstetrician who specializes in high-risk pregnancies) or neonatologist (pediatrician who specializes in treating health problems in newborns).
- Pediatrician referral. Often, your child’s primary care doctor will suggest a specialist consult to ensure you're getting expert guidance on behavior, development and genetics. We work with your family practitioner to treat and manage medical conditions related to Down syndrome.
- Self-referral. Whether you're looking for general information or dealing with a particular issue, we can help. We welcome patients with and without referrals.
Preparing for a clinic visit
Knowing what to expect at the Down syndrome clinic, helps make visits less stressful for your child. Depending on age, before the visit, talk about it with your child. Show your child a photo of the doctor from our directory.
Before your first visit, you'll receive an information packet with forms for you and, if age appropriate, your child's teacher to complete. We suggest you also bring:
- A birth record or discharge summary for infants
- An IEP for school age children
To help us complete initial paperwork and concentrate on your child’s care, it’s best to arrive about 15 minutes before your scheduled appointment. That way, we can zip through the registration and insurance process (remember to bring your insurance card and co-pay) and concentrate on what’s most important to us: talking to you and taking great care of your child.
Depending on your child's needs, your first visit will be with either a genetics or developmental practitioner. We'll spend some time talking about how your child is doing, do a complete physical exam and share medical and developmental recommendations. You'll also have an opportunity to meet with a genetic counselor and receive information on community resources. The first visit usually lasts about one hour.
Flexible care for growing kids
When it comes to caring, we follow your family's lead. If your child is very young, we might spend most of your visit answering your questions. With older children, we'll focus on learning, behavior and any other issues that pop up.
Many of our patients return for regular follow-ups. The conversation may change as your child grows, but one thing stays the same: our commitment to compassionate, personalized care for the whole child.
Down Syndrome - Health library and resources
We know you may want to dig for more information, so we gathered these easy-to-digest materials and resources from pediatric organizations in Minnesota and beyond.
Patient and Family Education Materials A-Z
Breastfeeding an Infant with Down Syndrome. Moms can promote healthy feeding by adjusting the baby's head and body position.
Imperforate Anus. Learn about treatment and home care for this birth defect, which is more common in children with Down syndrome.
Sleep: Home Program. Tips to promote healthy sleep habits and handle common problems.
Organizations that make a difference
Many excellent resources in the region offer support groups, education, recreational opportunities and practical help for children with special needs and their families.
The ARC Greater Twin Cities
Down Syndrome Association of Minnesota
Gigi's Playhouse Down Syndrome Achievement Centers
Help Me Grow
952-838-9000 or 800-537-2237
612-333-0999 or 800-783-7732
Suggested reading for families
We've created a reading list of picture books sure to delight kids with Down syndrome and their siblings.
Down Syndrome - Meet the team
Call us the smile specialists.
The team at Children’s Hospitals and Clinics of Minnesota has a deep understanding of Down syndrome. Our clinical outcomes are among the best around — but our favorite results are healthy, confident, independent kids.
Our team is made up of several types of professionals:
Developmental pediatricians have advanced training in assessing and treating children’s developmental, learning and behavioral issues. We have one board-certified developmental pediatrician on staff at the Down syndrome clinic.
Geneticists are physicians who specialize in diagnosing and treating genetic disorders like Down syndrome. We are lucky to have two board-certified geneticists on our team.
Pediatric nurse practitioners are advanced practice registered nurses. These professionals are specially trained and licensed to examine, diagnose and treat patients. The pediatric nurse practitioners at the Down syndrome clinic are key members of the team.
Genetic counselors are professionals with training in both counseling and medical genetics. They help educate families about genetics, assess their risk for inherited conditions, make informed decisions about family planning and access helpful resources in the community.
At Children’s, each patient has access to a wide range of specialists who genuinely care for children and families. Our Down syndrome clinic team works closely with other professionals, including cardiologists, endocrinologists, surgeons, dietitians and rehabilitation therapists.
If you’re visiting the Down Syndrome Clinic, keep an eye out for:
- Daniel S. McLellan, MD, who is medical director of the Down syndrome clinic.
See profiles for the top-notch doctors, advanced practitioners and genetic counselors at the Down Syndrome Clinic.