Comments on: A heart mom is born

By: Erin Wevers

Erin Wevers — Fri, 08 Feb 2013 14:50:45 +0000

We were told at 23 weeks along that my Bennett had a Complete AV canal defect and would need surgery in the first 6 months of life. After he was born, an echo showed that it was only a partial AV canal defect (thankfully)- so he basically had no septum between his atria, and his mitral valve was “faulty.” He went to Minneapolis Children’s on June 3, 2011 where they built him an atrial septum and did their best to fix his mitral valve- we only had to stay in the hospital for 6 days! He too will likely need surgery when he is older to fix his valve but is excelling now and is a vibrant 2 year old. Thank you Children’s for taking such good care of our boy! Thank you for your story- it’s nice to hear from other “heart moms.”

By: Julie Lee

Julie Lee — Thu, 07 Feb 2013 23:27:01 +0000

What a beautiful story. I was to a heart mom. I have my daughter last year. She was admitted to Children’s Hospital and have her first surgery at three months old and second one at 6 months but sadly she didn’t make it. She passed last October at 7 months old.

By: anna {girlwithblog.com}

anna {girlwithblog.com} — Thu, 07 Feb 2013 20:17:32 +0000

Elin, thank you for sharing your story. It made me all teary! Thankful for you and your little MJ =)

By: Stephanie McKaskle

Stephanie McKaskle — Thu, 07 Feb 2013 16:53:43 +0000

Oh, what a beautiful story and a beautiful little girl! Thanks for posting it.

Stephanie, Noah and Caroline (complex CHDs) McKaskle

By: Sarah

Sarah — Thu, 07 Feb 2013 16:26:57 +0000

Wow Elin!! This is such a beautiful post honoring your daughter and being proud of your heart mama badge. She is so lucky to have you as a mama!!

By: Diana' Bezdicek

Diana' Bezdicek — Thu, 07 Feb 2013 15:39:23 +0000

What a heart warming story, thank you for sharing your experience!

By: Theresa Paduano

Theresa Paduano — Thu, 07 Feb 2013 15:36:39 +0000

My beautiful 10 yr old Julia was born with pulmonary stenosis also! Your story brought me right back to Nov 27,2002. The only difference being that they took her immediately to the NICU then to the U of M
For her first surgery. We got to take her home, feeding tube intact approximately 20 days later. She underwent her second surgery at 18 months. She is so full of energy and life. I am thankful for her everyday!

By: Courtney

Courtney — Thu, 07 Feb 2013 15:30:07 +0000

My son had heart surgery at 3 days old on Nov. 17, 2011, ad again at 6 months on May 17, 2012, and Children’s Minneapolis. He has Pulmonary Atresia and Tetrology of Fallot. He is a healthy 15 month old now and I am also a very proud heart mom!

By: Patti Remington

Patti Remington — Thu, 07 Feb 2013 15:24:00 +0000

I to was a heart mom. Although I knew in advance of the issue, it was still very scary. My son Steven had heart surgery at 5days old. He had hypoplastic left heart syndrome. After 2 1/2 yr. and 8 surgery’s later we lost my son. One thing I can say about the whole situation is I never met a more caring and hardworking staff in my life. I seen Dr. and surgeons go days without sleep trying to find a way to save my son. I know this for a fact because I was awake with them. Just know they go every inch of an extra mile to make things right. Even though I lost my son, I still suggest to anyone I know who has a sick child to go straight to Childrens in Minneapolis. I know in my heart all stops were taken into saving my child.