Author Archives: ChildrensMN

3-year-old aspiring ballerina stays busy despite cancer

Lydia Fisher is in the maintenance phase of treatment.

Lydia Fisher is in the maintenance phase of treatment.

All Lydia Fisher talks about is ballet.

The 3-year-old girl probably will get to take ballet, adding to her already busy list of activities which includes swimming lessons and gymnastics – all normal things for a friendly, outgoing little girl.

“She’s just really an active 3-year-old. When you meet her on the street, you’d have no idea she’s undergoing chemotherapy,” her mother, Jane Fisher, said. “She’s such a trooper.”

Lydia 1Like most families, Lydia’s cancer diagnosis caught her parents, Jane and Jeremy Fisher, off guard.

“She was diagnosed with acute lymphoblastic leukemia (ALL) on her second birthday,“ Jane said. “She had been sick with fevers and aches for 14 days before our pediatrician said we should get worked up at Children’s Hospital. We were admitted, and a couple days later it was confirmed that Lydia had ALL after a bone marrow biopsy was completed. You never really think that you are going to be ‘that family.’ Like others, we’ve tried to face it head-on.”

Jane, who works at Children’s Hospital in another department, and her family always knew it was a wonderful place for families to be treated. But seeing it from the other side of the fence has been eye-opening for Lydia’s parents.

Subscribe to Mighty“The whole staff is amazing,” Jeremy said. “From the doctors on down to the housekeeping staff, everyone is so good at their jobs. Everyone stops to visit with us, support us and make sure we are doing well. Many of them aren’t even caring for Lydia. Everyone gets that same treatment; we appreciate it.”

Lydia is seen at the Minneapolis campus, and her primary oncologist is Kris Ann Schultz, MD. Lydia is in the maintenance phase of treatment. Her family anticipates she’ll complete treatment in September 2015.

“This past year, I think we’ve really settled into (cancer) just being part of our life and being part of our family,” Jane said. “We try not to make it be the center of everything. We try to make her childhood as normal as it can be.”

Leukemia hasn’t slowed energetic Ike

Ike Yarmon is in the maintenance phase of treatment, and his care team hopes he will finish treatment in July 2016.

Ike Yarmon is in the maintenance phase of treatment, and his care team hopes he will finish treatment in July 2016.

A child’s birthday should be fun and carefree. But just three days before Ike Yarmon turned 5 last year, his family got mind-blowing news: Ike had cancer.

At first, it seemed like Ike had a run-of-the-mill ear infection. Then, he developed a rash all over his body. It originally was thought to be a reaction to amoxicillin to treat his ear infection. During each visit, Ike’s pediatrician had his blood drawn, which indicated alarming white blood cell counts. It could be leukemia, his pediatrician said, but Ike didn’t have any other symptoms.

After continued declining white blood cell counts and a stubborn rash, his pediatrician recommended Ike’s parents, Chelsea and Chad Yarmon, take Ike to the emergency department at Children’s Hospitals and Clinics of Minnesota.

Ike’s lab results perplexed the emergency department staff. Due to the possibility of having a serious viral infection, Ike saw Children’s infectious disease specialists. Further blood tests didn’t reveal a virus or inflammatory disease. Three days later, Ike underwent a bone marrow aspiration, which showed Ike had B-ALL leukemia.

Subscribe to MightyIke’s diagnosis has been life-changing for his family. It has shown them the “true meaning of living,” given them more purpose and brought them closer, Chelsea said.

“We fight so these children no longer have to endure these horrible treatments and so that no parent ever has to hear the life-altering words of ‘your child has cancer,’ ” Chelsea said.

Ike is in the maintenance phase of treatment, and his care team hopes he will finish treatment in July 2016. While his family counts the days until treatment is over, it hasn’t kept him from playing hockey and baseball, being outside and playing with his sisters and spending time with his family. He’s full of energy.

“We feel incredibly lucky and blessed that, even though Ike has cancer, he was diagnosed with a highly curable form and is handling his treatments like a true champ,” Chelsea said. “We know that his prognosis could be in a much different place, and for that we are truly grateful.”

Wisconsin girl perseveres through cancer relapse

Reagan completed her initial treatment April 1.

Reagan Robertson, of Frederic, Wis., completed her initial treatment April 1.

Like most little girls, Reagan Robertson of Frederic, Wis., has a healthy list of her favorite things. Not surprisingly, Disney princesses and baby dolls rank high on her list. But you can also add dance parties, horses, puppies, kitties, fingernail polish and bike rides with her dad to that list.

A brave, sweet girl, Reagan already has been through a lot in her young life.

It was Oct. 17, 2013, when doctors first mentioned “leukemia” to her parents, Alison Lake and Allen Robertson. When a subsequent bone marrow biopsy didn’t confirm the disease, the Robertsons stayed in the hospital for eight days while the doctors tried to pinpoint her exact condition. Eventually, the Robertsons were sent home with “pre-leukemia” until Nov. 8, when acute myeloid leukemia was confirmed.

Subscribe to MightyReagan completed her initial treatment April 1 (four rounds of chemotherapy with each round averaging 25 days inpatient and 12 days at home). Then, on May 16, she relapsed. She had an additional two rounds of chemo. If these rounds of chemo put her into remission, she’ll be getting a bone marrow transplant, hopefully, this month.

Alison is appreciative of the care they receive from Dr. Jawhar Rawwas and the staff at Children’s.

“I feel like the oncology team cares for Reagan,” she said. “When she relapsed, they were upset for us. The doctors and nurses are very attentive and do a good job in every aspect of care.”

Reagan’s lengthy hospital stays have had an impact on her. Alison figures Reagan will be a nurse when she grows up since she regularly helps the nurses do vitals, does dressing changes on her stuffed animals and takes alcohol wipes and cleans the lines. She always helps flush her g-tube and even refers to herself as “baby nurse.”

Reagan is a fighter and up to the challenges ahead of her.

“When she’s feeling good and not in the hospital, she is an absolute joy to be around,” Alison said. “She’s so happy and smiling and funny. She can be a tad grumpy in the hospital and sometimes people don’t really get to see her true nature. She is our ‘Rea of Sunshine.’ ”

Break for breakfast: Tips for a healthy start

With the school under way, your child may be in a hurry to get ready in the morning – and that includes trying to fit in time to eat breakfast and pack a lunch.

Since diet plays a huge role in childhood obesity, it’s important to make sure a child is eating right even when you’re not there to supervise or cook. Four out of five kids from 12 to 19 years old have “poor diets” – high in salt and sugar-sweetened beverages and low in fruits, vegetables, fiber and lean protein.

In Minnesota, nearly one out of four kids has weight problems. Among Minnesota adolescents ages 10 to 17, about 11.1 percent are obese.

Subscribe to Mighty“Beginning your day with a healthy breakfast is a good way to wake up your body and brain,” said Julie Boman, MD, a pediatrician at Children’s Hospitals and Clinics of Minnesota.

How do you make sure your child gets a healthy start? Boman weighs in with these four tips:

  1. Stock the cupboards and refrigerator with healthy choices. They can include whole grain cereal, fresh fruit, yogurt and eggs.
  2. Make it convenient. If you buy strawberries, wash and slice them up so they’re ready for your child to grab and go.
  3. Whenever possible, encourage your child to sit down and have breakfast.
  4. If your child is older, plan the menu for the week together.

Physical punishment of children not a long-term, healthy solution

(iStock photo / Getty Images)

(iStock photo / Getty Images)

Alice Swenson, MD, is a child abuse pediatrician at the Midwest Children’s Resource Center, a clinic which is dedicated to the medical evaluation of suspected child abuse and neglect.

Alice Swenson, MD

Alice Swenson, MD

There has been much conversation in the media regarding corporal punishment and physical abuse of children. We at Children’s Hospitals and Clinics of Minnesota have an obligation to protect the health and safety of all children in our community and to respond to questions about discipline and abuse. The American Academy of Pediatrics (AAP) reaffirmed its statement on discipline in 2012. The statement concludes that the purpose of discipline is to “teach or instruct” a child to prepare him or her to “achieve competence, self-control, self-direction, and caring for others.”

And while physical punishment of a child may be immediately effective in stopping an unwanted behavior, it is less useful in the long term. Spanking or hitting a child “models aggressive behavior as a solution to conflict and has been associated with increased aggression” in children. In addition, parents who resort to physical discipline are more likely to escalate the severity of the punishment in order to continue to achieve the desired effect, resulting in serious injury and abuse. We share the position of the AAP, that physical punishment of a child is not the optimal approach to discipline.

Additional resources and information:

Elk River teen siblings share cancer stories

Siblings Aaron (left) and Abby Dwyer of Elk River were diagnosed with cancer four years apart.

Siblings Aaron (left) and Abby Dwyer of Elk River were diagnosed with cancer four years apart.

Abby Dwyer, who was featured at this year’s Pine Tree Apple Tennis Classic, is a wonderful young adult who faced cancer head-on after being diagnosed with Philadelphia chromosome positive ALL leukemia almost five years ago.

Abby has been off treatment for two years and is doing well after undergoing a double knee replacement when she was 14 because chemotherapy treatments destroyed her knees.

Abby, a sophomore at Elk River High School, where she plays the saxophone in the band, enjoys participating in pep rallies. She has one brother, Aaron, who later was diagnosed with cancer, and one sister, Allison. Her parents are Tim and Terri Dwyer.

“The staff at Children’s – Minneapolis have been amazing with her treatment,” Terri said. “It is because of Dr. Joanna Perkins, her primary doctor; Dr. Bruce Bostrom and many others that we have our Abby here today with us. Abby’s treatment was very intense for 20 months. We are so grateful for the support and care that the nurses in the hospital and in clinic have given to Abby.”

Abby’s favorite nurse at Children’s was Erin Ryan, RN, because she showed so much compassion to Abby during her difficult treatment. Abby is quick to note that there were many nurses that impacted her care and made her many nights in the hospital more bearable and fun.

Abby loves the outdoors, especially mountains, and to attend camps, which she has done three times this summer.

Spend time with Abby and you’ll see that she is a kind and independent person who loves to be around children. She’s always looking out for others and offering of herself with her servant’s heart. She loves to hang out with friends, play games and watch TV. Abby has an infectious laugh and positive attitude that follow her.

Abby wants to be a nurse or a child life specialist in the future as a way to give back to her community for all of the things that were given to her.

Subscribe to MightyAfter watching sister battle cancer, Aaron Dwyer faces fight of his own

Aaron Dwyer, who saw his sister, Abby, battle cancer, was diagnosed with stage 3 T-cell lymphoma on Dec. 13, 2013, four years after his sister’s cancer diagnosis.

Aaron has 1½ years of treatment remaining. In spite of it being a tough road, he has handled it well by trying to stay positive and keep his faith.

“The Children’s staff has been amazing to Aaron. They welcomed him in and have taken incredible care of him during his treatment,” his mother, Terri Dwyer, said. Aaron’s primary doctor, Joanna Perkins, MD, was there for Abby’s treatment, too. “Aaron has had a couple tough points in his treatment, but the staff stepped in and truly gave Aaron the support and encouragement he needed. We could not have made it through it all without the caring team at Children’s.”

The Elk River High School senior plays the trumpet in the band and two jazz bands.

When pressed, Aaron admitted that two nurses are his favorite. John is his favorite nurse at clinic because the two share many of the same interests, and Leah is his favorite nurse in the hospital because she always makes him laugh and they joke around, which makes his stays a bit more bearable.

Aaron wants to go into the banking as a career. He’s already had a taste of it at his job as a bank teller, and he enjoys it.

Outside of work and school, Aaron is busy. He likes to spend his free time cooking new and delicious recipes. He also enjoys hanging out with friends and playing games, riding four-wheelers, running and spending time at home. But that’s not all. He also enjoys playing piano, listening to country music, hunting, target practice, camping with his family and hiking.

Like his sisters, Abby and Allison, Aaron is a kind and giving person who always has a smile on his face. He’s a hard worker with a great attitude about life and a great sense of humor.

Cancer survivor, bone marrow recipient aspires to be doctor

Maddie Travers, a seventh-grader, lives in Scandia, Minn.

Maddie Travers, a seventh-grader, lives in Scandia, Minn.

Look up the words “tough,” “fighter” and “loved,” and wherever they intersect, there is sure to be a picture of Maddie Travers.

Maddie was diagnosed with ALL leukemia on Dec. 7, 2011. As her mother, Nikki, noted, “It was the worst day of our lives.”

Since that day, Maddie has battled to get to where she is now. She had two CNS relapses. At that point, her only option was a bone marrow transplant. But she had an infection and was admitted to the intensive care unit for 14 days over Christmas, with five of those days on life support. She had her transplant in April this year.

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Maddie received a bone marrow transplant in April.

She did well at first but then came down with a series of infections. After 96 days in the hospital, Maddie was released to go home on IV antibiotics.

”We can’t wait to get back to all the wonderful people at Children’s. We miss them so much,” Nikki said. “Maddie is seen by Dr. Bruce Bostrom. He has been so wonderful to us throughout all of this. He texts me so I can ask him questions. Dr. Bostrom and Maddie’s favorite nurse, Liz, would come over to the hospital to see her even when she was on life support. Dr. Bostrom would text me when Maddie was really sick and let me know that he knew what was going on and that he was there if I needed him. That really meant so much to both of us.”

Today, Maddie and the Travers family are looking ahead. Maddie, a seventh-grader, lives in Scandia and will be home schooled as she continues to recover from her bone marrow transplant.

Maddie wants to be a doctor when she grows up due to her firsthand experience in hospitals and “never give up” attitude.

Participate in #FighttheFluMN photo challenge

flu_prevention_kohls_600x600_4Flu season is just around the corner here in Minnesota and across the country. The Kohl’s Cares and Children’s Flu Prevention Project wants to know how you and your family plan to fight the flu this year. You’re invited to participate in the Flu Prevention Photo Challenge to show us how.

photoHere’s how to participate:

1. Snap a photo of you and/or your family fighting the flu.

Examples include:

  • Getting a flu vaccine
  • Washing your hands
  • Covering your cough
  • Showing off your “I got vaccinated” sticker

2. Post your photo on Twitter or Instagram using #FighttheFluMN (not case sensitive).

The contest runs until Wednesday (Sept. 17). Submit as many photos as you’d like. At the end of the day Wednesday, we’ll choose, at random, five people who each will receive a $50 Kohl’s gift card. Good luck and happy snapping!

Contest rules: Only photos posted by persons 18 years of age or older are eligible.

Social media disclaimer: We welcome and encourage open discussion on Children’s Hospitals and Clinics of Minnesota’s (Children’s) social media sites  including but not limited to our blogs, Facebook, Twitter, YouTube pages and online story-sharing forums  and look forward to any comments, stories and experiences you want to share. Other than the entries Children’s posts ourselves, the opinions and/or views expressed on these sites represent the thoughts of individual bloggers and online communities, and not those necessarily of Children’s or any of our directors, officers, employees, research staff, medical staff or members of our board of directors. All links to other websites found linked from Children’s social media sites are provided as a service to readers, but such linkage does not constitute endorsement of those sites by Children’s, and as such we are not responsible for the content of external websites.

While Children’s makes reasonable efforts to monitor and/or moderate content posted on our social media sites, we do not moderate all comments and cannot always respond in a timely manner to online requests for information. Children’s reserves the sole right to review, edit and/or delete any comments it deems are inappropriate. Comments including, but not limited to, the following may be deleted or edited by Children’s:

  • Abusive or hurtful comments about a blogger or another participant
  • Off-topic and redundant comments (this includes promotion of events, groups, pages, Web sites, organizations and programs not related to or affiliated with Children’s)
  • Comments that use foul language or “hate speech” (e.g., racial, ethnic or gender bashing language)
  • Personal attacks or defamatory statements or comments about a participant, instead of just criticizing his/her posting, opinion or comments
  • Comments that violate the privacy of our patients and their families

Please remember that information posted on any of our social media sites shouldn’t be considered medical advice and shouldn’t replace a consultation with a health care professional.

Please be aware that once you post something online, there’s the potential for thousands (or hundreds of thousands) of people to read your words, even years from now. We therefore suggest that you exercise caution when posting medical information on any of our social media sites and that you not disclose personal identifiable information like your location, medical record number, financial information, etc.

By submitting content to any of Children’s social media sites, you understand and acknowledge that this information is available to the public, and that Children’s may use this information for internal and external promotional purposes and fundraising purposes. Please note that other participants may use your posted information beyond the control of Children’s. If you do not wish to have the information you have made available via this site used, published, copied and/or reprinted, please do not post on this page.

Fight the flu, we challenge you

flu_prevention_kohls_600x600_4photo 1Flu season is just around the corner here in Minnesota and across the country. The Kohl’s Cares and Children’s Flu Prevention Project wants to know how you and your family plan to fight the flu this year. Participating Kohl’s stores (Roseville, Owatonna, Mankato, Blaine, Maplewood and St. Cloud) will be holding two clinics from 4-8 p.m. Friday, Sept. 12, and 10 a.m. to 2 p.m. Saturday, Sept. 13.

You are invited to participate in the Flu Prevention Photo Challenge to show us how.

Here’s how to participate:

1. Snap a photo of you and/or your family fighting the flu.

Examples include:

  • Getting a flu vaccine
  • Washing your hands
  • photo 2Covering your cough
  • Showing off your “I got vaccinated” sticker

2. Post your photo on Twitter or Instagram using #FighttheFluMN (not case sensitive)

The contest will run from Sept. 12-17. During that time, we encourage you to submit as many photos as you like. At the end of the day on Sept. 17, we will choose, at random, five people who each will receive a $50 Kohl’s gift card. Good luck and happy snapping!

Contest rules: Only photos posted by persons 18 years of age or older are eligible.

Social media disclaimer: We welcome and encourage open discussion on Children’s Hospitals and Clinics of Minnesota’s (Children’s) social media sites  including but not limited to our blogs, Facebook, Twitter, YouTube pages and online story-sharing forums  and look forward to any comments, stories and experiences you want to share. Other than the entries Children’s posts ourselves, the opinions and/or views expressed on these sites represent the thoughts of individual bloggers and online communities, and not those necessarily of Children’s or any of our directors, officers, employees, research staff, medical staff or members of our board of directors. All links to other websites found linked from Children’s social media sites are provided as a service to readers, but such linkage does not constitute endorsement of those sites by Children’s, and as such we are not responsible for the content of external websites.

While Children’s makes reasonable efforts to monitor and/or moderate content posted on our social media sites, we do not moderate all comments and cannot always respond in a timely manner to online requests for information. Children’s reserves the sole right to review, edit and/or delete any comments it deems are inappropriate. Comments including, but not limited to, the following may be deleted or edited by Children’s:

  • Abusive or hurtful comments about a blogger or another participant
  • Off-topic and redundant comments (this includes promotion of events, groups, pages, Web sites, organizations and programs not related to or affiliated with Children’s)
  • Comments that use foul language or “hate speech” (e.g., racial, ethnic or gender bashing language)
  • Personal attacks or defamatory statements or comments about a participant, instead of just criticizing his/her posting, opinion or comments
  • Comments that violate the privacy of our patients and their families

Please remember that information posted on any of our social media sites shouldn’t be considered medical advice and shouldn’t replace a consultation with a health care professional.

Please be aware that once you post something online, there’s the potential for thousands (or hundreds of thousands) of people to read your words, even years from now. We therefore suggest that you exercise caution when posting medical information on any of our social media sites and that you not disclose personal identifiable information like your location, medical record number, financial information, etc.

By submitting content to any of Children’s social media sites, you understand and acknowledge that this information is available to the public, and that Children’s may use this information for internal and external promotional purposes and fundraising purposes. Please note that other participants may use your posted information beyond the control of Children’s. If you do not wish to have the information you have made available via this site used, published, copied and/or reprinted, please do not post on this page.

Boy battles brain tumor, congenital heart disease

Dylan Jones was born with tetralogy of Fallot, a problem with the heart’s structure that changes the normal flow of blood through the heart.

Dylan Jones was born with tetralogy of Fallot, a problem with the heart’s structure that changes the normal flow of blood through the heart.

To say the Jones family has had their share of devastation would be an understatement.

Dylan Jones was born with tetralogy of Fallot, a problem with the heart’s structure that changes the normal flow of blood through the heart. Eight years later, he was diagnosed with cancer.

In December 2013, Dylan became unresponsive at school in Illinois. He regained consciousness within a minute and was talking by the time school staff called his mother, Elizabeth Jones. He seemed OK, but everyone agreed that he needed to be seen by a doctor, so his mom drove him to a nearby emergency room.

Calm quickly turned into fear.

“It wasn’t until we got to the emergency room and they did a CT scan that it was all a shock to us,” Elizabeth said.

Dylan had a medulloblastoma, a fast-growing, high-grade brain tumor. He underwent surgery to remove the tumor, leaving him wheelchair bound and legally blind. After surgery, he was taken by air transport to Children’s Hospitals and Clinics of Minnesota to continue care close to extended family.

He underwent six weeks of radiation and chemotherapy. In April, he started another round of chemo that’s scheduled to end this month.

Subscribe to MightyDylan’s case is unique, and he requires a lot of attention when he’s hospitalized, Elizabeth said. But the nurses don’t mind. He’s such a charmer that they “fight” over him, she said.

“I can’t ask for better doctors. I can’t ask for better staff,” Elizabeth said.

Since starting chemotherapy, the hospital has become like a second home. The past four months have felt like the longest of Elizabeth’s life, she said.

Between his brain tumor and congenital heart disease, Dylan has suffered a lot in his short life.

“If I could take his place, I would. We fight, though. He’s a fighter,” Elizabeth said. “For all he has been through, he still continues to put a smile on his face, no matter what.”