Category Archives: Featured

Wisconsin girl hasn’t slowed 6 years after cancer diagnosis

Vanessa Achterhof was diagnosed with type 2 Wilms’ tumor six years ago in December, and since has had one of her kidneys removed.

Vanessa Achterhof, of Baldwin, Wis., continues to have checkups every six months at Children’s to monitor her kidney.

Vanessa Achterhof, of Baldwin, Wis., continues to have checkups every six months at Children’s to monitor her kidney.

The 15-year-old from Baldwin, Wis., had 18 weeks of chemotherapy followed by physical therapy. She continues to have checkups every six months at Children’s with Dr. Kris Ann Schultzto monitor her kidney.

Vanessa said three of her favorite nurses at Children’s helped her through the life-changing experience.

“Linda always makes my day and tells me I was one heck of a strong girl. She would always tell me how beautiful I was, even with no hair,” Vanessa said. “To this day, she remembers me and can still put a big smile on my face.

“Jody the social worker is a wonderful person as well. She was always so pleasant and talked to all of us. She had wonderful ideas to help us out and made our whole family feel special.There is one other nurse that I will never forget. I was in Children’s on Christmas Eve night and had a night nurse who told me I was a strong young girl who could push through anything. She was also a cancer survivor of Wilms’ tumor, and if she made it through it, she said I could, too. Unfortunately, we never got her name.”

Cancer hasn’t slowed Vanessa down – now or in planning for the future.

Subscribe to Mighty“I am involved in basketball, volleyball and 4H,” Vanessa said. “I love to show cattle, be a part of our home farm as much as I can and hang out with my friends.”

She is considering being a social worker, working with cancer patients.

“I would love to make their day, play games with them and make them feel special,” Vanessa said. She also wants to go into something to do with animals, specifically cows. She loves the outdoors and spending time on her father’s farm.

Even though Vanessa has been through a lot, she has emerged through it all a caring person with a heart of gold to help anyone in need.

Trauma 101: What it means to be a Level I pediatric trauma center

Our pediatric specialists in Minneapolis are on site, not on call, so they can get to children immediately.

Children’s pediatric specialists in Minneapolis are on site, not on call, so they can get to children immediately.

On the surface, it may be difficult to distinguish one hospital from another. Each one has doctors, nurses and operating rooms. Every place has an emergency room, and all ERs are the same, right?

Not exactly.

So then what does it mean when you’re told that Children’s Hospitals and Clinics of Minnesota has a Level I pediatric trauma center in Minneapolis?

Established in June 2013, Children’s Level I Pediatric Trauma Center in Minneapolis received the American College of Surgeons’ verification by meeting the highest standards of expertise and level of preparation to care for critically injured children, which increases Children’s commitment to families throughout the region. Children’s – Minneapolis was designated by the Minnesota Department of Health as the first and only pediatric-only hospital in the state with ACS Level I recognition.

Children’s can accept injured kids directly from the site of the traumatic injury via ambulance or helicopter instead of being transferred from another hospital after being stabilized.

Children’s can accept injured kids directly from the site of the traumatic injury via ambulance or helicopter instead of being transferred from another hospital after being stabilized.

Trauma

Trauma is the leading cause of death and disability in children.The first hour after an accident, the golden hour, is critical. Children’s can accept injured kids directly from the site of the traumatic injury via ambulance or helicopter instead of being transferred from another hospital after being stabilized.

Children’s – Minneapolis’ transformation from Level III status to Level I took three years, a process that was sped up with help of $17.5 million grant and ongoing philanthropic partnership from Minnetonka-based UnitedHealthcare, a UnitedHealth Group company, in 2010, making the UnitedHealthcare Pediatric Emergency Department and Level I Trauma Center a reality.

The emergency department at Children’s – St. Paul, which is Level III, has been renovated, and its staff go through the same training as those in Minneapolis.

At its Minneapolis and St. Paul hospitals, Children’s receives more than 90,000 visits annually and treats nearly 40 percent of Twin Cities pediatric trauma cases.

At its Minneapolis and St. Paul hospitals, Children’s receives more than 90,000 visits annually and treats nearly 40 percent of Twin Cities pediatric trauma cases.

Level I standards

At its Minneapolis and St. Paul hospitals, Children’s receives more than 90,000 visits annually and treats nearly 40 percent of Twin Cities pediatric trauma cases. When it comes to ACS-verified Level I attributes, Children’s has:

  • More than 150 emergency department staff, including board-eligible or board-certified pediatric emergency physicians, nurse practitioners, nurses and more
  • 24/7 in-house pediatric trauma surgeon; Children’s pediatric specialists in Minneapolis are on site, not on call, so they can get to kids immediately
  • Two large trauma bays, resuscitation rooms, a helipad and dedicated orthopedic room for fractures, featuring advanced X-ray capabilities
  • Research programs and performance improvement efforts to ensure that each patient experience leads to the best possible outcome
  • Injury prevention efforts such as Making Safe Simple, Children’s public education program designed to arm the community with basic safety and injury prevention tips

Subscribe to MightyPlan for the unplanned

You plan everything out for your kids (classes, camps and nutrition). It’s important to have a plan in case they’re in a serious accident. If your child has an emergency, know where to go. Program Children’s ER contact information into your phone. Children’s Hospitals and Clinics of Minnesota are located in Minneapolis (2525 Chicago Ave. S.) and St. Paul (345 N. Smith Ave.)

When it’s critical, so is your choice – Children’s Level I Pediatric Trauma Center, Minneapolis.

Burnsville boy tops cancer, ready to take on kindergarten

With cancer in the past, Nolan Luther is ready for kindergarten at Sioux Trail Elementary School in Burnsville.

With cancer in the past, Nolan Luther is ready for kindergarten at Sioux Trail Elementary School in Burnsville.

Nolan Luther was diagnosed with rhabdomyosarcoma, a cancerous tumor of the muscles, on June 3, 2013.

He finished chemo in March and will have quarterly scans for the next two years before they become less frequent. He may undergo surgery to help reanimate the left side of his face. The tumor damaged Nolan’s facial nerve.

Nolan Luther

Nolan finished chemo in March and will have quarterly scans for the next two years before they become less frequent.

With cancer in the past, Nolan is ready for kindergarten at Sioux Trail Elementary School in Burnsville.

“Nolan is very curious. He asks about 400 questions a day,” his parents, Tara and Kevin, said. “He is a sensitive kid and shy at first, but once he is comfortable he is incredibly confident. Towards the end of treatment, Nolan would often direct his nurses on what type of drugs he should have and how they should administer his shots and access his port.”

School won’t be the only thing on his mind. Nolan loves soccer and gymnastics. This summer, he has been able to do more of both activities. He also is good with Legos. The Luthers recently put together a 1,200-piece Millennium Falcon from “Star Wars,” and Nolan did the majority of it by himself.

Subscribe to MightyNolan’s parents are thankful for the care throughout his treatment.

“The care Nolan received at Children’s was really top notch,” Kevin said. “We felt so confident and comfortable that Dr. Kris Ann Schultz was doing everything possible to ensure the best outcome for Nolan. We appreciated the long-term focus and proactive attention that Children’s provided. They started physical therapy early to give Nolan the best chance for a quick physical recovery.

“As crazy as it sounds to some people, we consider ourselves lucky. Maybe not in the normal sense, but lucky that we fell into this journey at Children’s and we found ourselves with an amazing team of specialists – not just the doctors, but nurses, physical therapists, social workers and child life specialists – that were able to provide fantastic care and support. We are fortunate to benefit from the experience of patients who have gone before us and the research that has gone into pediatric cancers.”

Top 10 reasons why kids have to go to the ER

At Children’s Hospitals and Clinics of Minnesota, our Level I Pediatric Trauma Center in Minneapolis is the only one of its kind in the state. When it’s critical, so is your choice. We see kids in our emergency room for a variety of reasons. Here are the top 10:

10. Poisoning

(iStock photo / Getty Images)

(iStock photo / Getty Images)

Be sure to keep medications, cleaners and other potential household hazards away from children.

9. Water activities

(iStock photo / Getty Images)

(iStock photo / Getty Images)

Injuries that happen in water, including slipping in the bathtub, boating accidents, swimming and diving, can lead to a trip to the ER.

8. Wheeled sports (skateboards, inline skates, scooters)

(iStock photo / Getty Images)

(iStock photo / Getty Images)

It doesn’t matter if there’s no motor. If there’s wheels, there’s a way.

7. Seasonal activities

(iStock photo / Getty Images)

(iStock photo / Getty Images)

This category includes just about anything under the sun, as long as it’s not an activity that takes place year-round. Seasonal activities can include snowboarding, sledding, ice skating, ATV and horseback riding.

6. Violence

(iStock photo / Getty Images)

(iStock photo / Getty Images)

This one is fairly self-explanatory. Unfortunately, violent actions of all kinds are a reason we see kids in the ER.

5. Motor vehicle accidents

(iStock photo / Getty Images)

(iStock photo / Getty Images)

Accidents involving cars or other motor vehicles are the fifth-most-common reason kids visit the ER.

4. Bicycle accidents

(iStock photo / Getty Images)

(iStock photo / Getty Images)

This writer had countless spills off of his bike as a kid. Fortunately, none of them led to a hospital visit. When riding, be safe and make sure you wear a properly fitting helmet!

3. Playgrounds spills

(iStock photo / Getty Images)

(iStock photo / Getty Images)

Playgrounds are a common source of leading to ER trips. Play hard, but play safely.

2. Sports

(iStock photo / Getty Images)

(iStock photo / Getty Images)

It’s no surprise due to the popularity and abundant variety of sports that it’s one of the main reasons children can land in the emergency room.

1. Home injuries

 

(iStock photo / Getty Images)

(iStock photo / Getty Images)

Home may be where the heart is, but it’s also where most injuries happen. Simply due to the amount of time we spend at home compared to anywhere else, we’re bound to occasionally trip down the stairs or bump our head on a table. Make sure your home is appropriately set up for its occupants to maximize safety.

Serving up strategy

Kids are born wanting to eat. And they know when they’re hungry. It’s our job as parents to provide structure, support and opportunities.

Kids are born wanting to eat. And they know when they’re hungry. It’s our job as parents to provide structure, support and opportunities.

By Maggie Sonnek

We’ve tried peas. We’ve tried broccoli. We’ve even tried Brussels sprouts. Alas, our 2-year-old continues to ignore that pile of “green stuff” on his plate and reach for the carbs instead (just like his mother).

After chatting with Janie Cooperman, MS, RD, LD, CDE, Pediatric Clinical Dietitian at Children’s Hospitals and Clinics of Minnesota, I now can come to the table feeling a little more prepared to take on a toddler at dinnertime. (Sounds like a thrilling TV show, doesn’t it?). I feel so enthused with what I’ve learned that I just had to share. 

Keep offering

Cooperman suggests offering specific foods 12-15 times before retiring them from the household menu. That’s a lot of peas! She also touts variety when planning the weekly carte du jour. For example, instead of plain bread, try whole wheat tortillas or pita pockets.

Division of responsibility

Kids are born wanting to eat. And they know when they’re hungry. It’s our job as parents to provide structure, support and opportunities.

Cooperman sites Ellyn Satter, an expert on the topic of the division of responsibility in feeding. Basically, this means we the parents are responsible for what, when and where our kids eat. They’re responsible for how much and whether they eat.

Yep. I said “whether.”

Cooperman suggests offering three scheduled meals a day with two or three snacks in between. “Eventually the child begins to understand the schedule and expectations,” she said. “Since he is not receiving food other than at the scheduled meals and snacks, he will soon get hungry enough and realize that he has no other option but to eat what’s being offered.”

Subscribe to MightyMake it a non-issue

You know the old standby, “You can’t leave the table till your plate’s clean”? Well, turns out, forcing a clean plate prevents kids from learning to pick up on their own hungry and satiety cues. Apparently most of us unlearn the natural inclinations of when we’re full and hungry sometime between the ages of 3 and 5.

Cooperman suggests making the amount of food your child eats a non-issue. She dissuades from offering rewards for eating. “If they refuse to eat, let it go,” she said. “But keep offering it at future meals. Try not to let kids get power and control.” (Writer’s note: I’m totally guilty of bribing my son with a chocolate chip cookie for taking a bite of broccoli. Oops.) 

Eat mindfully 

Eating dinner together as a family has a lot of benefits. The Family Dinner Project, a grassroots movement driven by insights and experiences of families, says recent studies find regular family dinners can help lower rates of substance abuse, teen pregnancy and depression. Studies show that dinner conversation can help improve vocabulary more than reading.

But let’s focus on the obvious: eating together. Parents modeling healthy habits, like munching on fruits and veggies, provide a good example for kids. Cooperman touts the importance of eating mindfully.

“Slow down, connect and enjoy what you’re eating,” she said. “Appreciate the food and your time together; it’s a more-balanced way of eating and living.” 

Maggie Sonnek is a writer, blogger, lover-of-outdoors and momma to two young kiddos. When she’s not kissing boo-boos or cutting up someone’s food, she likes to beat her husband at Scrabble.

3-year-old aspiring ballerina stays busy despite cancer

Lydia Fisher is in the maintenance phase of treatment.

Lydia Fisher is in the maintenance phase of treatment.

All Lydia Fisher talks about is ballet.

The 3-year-old girl probably will get to take ballet, adding to her already busy list of activities which includes swimming lessons and gymnastics – all normal things for a friendly, outgoing little girl.

“She’s just really an active 3-year-old. When you meet her on the street, you’d have no idea she’s undergoing chemotherapy,” her mother, Jane Fisher, said. “She’s such a trooper.”

Lydia 1Like most families, Lydia’s cancer diagnosis caught her parents, Jane and Jeremy Fisher, off guard.

“She was diagnosed with acute lymphoblastic leukemia (ALL) on her second birthday,“ Jane said. “She had been sick with fevers and aches for 14 days before our pediatrician said we should get worked up at Children’s Hospital. We were admitted, and a couple days later it was confirmed that Lydia had ALL after a bone marrow biopsy was completed. You never really think that you are going to be ‘that family.’ Like others, we’ve tried to face it head-on.”

Jane, who works at Children’s Hospital in another department, and her family always knew it was a wonderful place for families to be treated. But seeing it from the other side of the fence has been eye-opening for Lydia’s parents.

Subscribe to Mighty“The whole staff is amazing,” Jeremy said. “From the doctors on down to the housekeeping staff, everyone is so good at their jobs. Everyone stops to visit with us, support us and make sure we are doing well. Many of them aren’t even caring for Lydia. Everyone gets that same treatment; we appreciate it.”

Lydia is seen at the Minneapolis campus, and her primary oncologist is Kris Ann Schultz, MD. Lydia is in the maintenance phase of treatment. Her family anticipates she’ll complete treatment in September 2015.

“This past year, I think we’ve really settled into (cancer) just being part of our life and being part of our family,” Jane said. “We try not to make it be the center of everything. We try to make her childhood as normal as it can be.”

Leukemia hasn’t slowed energetic Ike

Ike Yarmon is in the maintenance phase of treatment, and his care team hopes he will finish treatment in July 2016.

Ike Yarmon is in the maintenance phase of treatment, and his care team hopes he will finish treatment in July 2016.

A child’s birthday should be fun and carefree. But just three days before Ike Yarmon turned 5 last year, his family got mind-blowing news: Ike had cancer.

At first, it seemed like Ike had a run-of-the-mill ear infection. Then, he developed a rash all over his body. It originally was thought to be a reaction to amoxicillin to treat his ear infection. During each visit, Ike’s pediatrician had his blood drawn, which indicated alarming white blood cell counts. It could be leukemia, his pediatrician said, but Ike didn’t have any other symptoms.

After continued declining white blood cell counts and a stubborn rash, his pediatrician recommended Ike’s parents, Chelsea and Chad Yarmon, take Ike to the emergency department at Children’s Hospitals and Clinics of Minnesota.

Ike’s lab results perplexed the emergency department staff. Due to the possibility of having a serious viral infection, Ike saw Children’s infectious disease specialists. Further blood tests didn’t reveal a virus or inflammatory disease. Three days later, Ike underwent a bone marrow aspiration, which showed Ike had B-ALL leukemia.

Subscribe to MightyIke’s diagnosis has been life-changing for his family. It has shown them the “true meaning of living,” given them more purpose and brought them closer, Chelsea said.

“We fight so these children no longer have to endure these horrible treatments and so that no parent ever has to hear the life-altering words of ‘your child has cancer,’ ” Chelsea said.

Ike is in the maintenance phase of treatment, and his care team hopes he will finish treatment in July 2016. While his family counts the days until treatment is over, it hasn’t kept him from playing hockey and baseball, being outside and playing with his sisters and spending time with his family. He’s full of energy.

“We feel incredibly lucky and blessed that, even though Ike has cancer, he was diagnosed with a highly curable form and is handling his treatments like a true champ,” Chelsea said. “We know that his prognosis could be in a much different place, and for that we are truly grateful.”

Wisconsin girl perseveres through cancer relapse

Reagan completed her initial treatment April 1.

Reagan Robertson, of Frederic, Wis., completed her initial treatment April 1.

Like most little girls, Reagan Robertson of Frederic, Wis., has a healthy list of her favorite things. Not surprisingly, Disney princesses and baby dolls rank high on her list. But you can also add dance parties, horses, puppies, kitties, fingernail polish and bike rides with her dad to that list.

A brave, sweet girl, Reagan already has been through a lot in her young life.

It was Oct. 17, 2013, when doctors first mentioned “leukemia” to her parents, Alison Lake and Allen Robertson. When a subsequent bone marrow biopsy didn’t confirm the disease, the Robertsons stayed in the hospital for eight days while the doctors tried to pinpoint her exact condition. Eventually, the Robertsons were sent home with “pre-leukemia” until Nov. 8, when acute myeloid leukemia was confirmed.

Subscribe to MightyReagan completed her initial treatment April 1 (four rounds of chemotherapy with each round averaging 25 days inpatient and 12 days at home). Then, on May 16, she relapsed. She had an additional two rounds of chemo. If these rounds of chemo put her into remission, she’ll be getting a bone marrow transplant, hopefully, this month.

Alison is appreciative of the care they receive from Dr. Jawhar Rawwas and the staff at Children’s.

“I feel like the oncology team cares for Reagan,” she said. “When she relapsed, they were upset for us. The doctors and nurses are very attentive and do a good job in every aspect of care.”

Reagan’s lengthy hospital stays have had an impact on her. Alison figures Reagan will be a nurse when she grows up since she regularly helps the nurses do vitals, does dressing changes on her stuffed animals and takes alcohol wipes and cleans the lines. She always helps flush her g-tube and even refers to herself as “baby nurse.”

Reagan is a fighter and up to the challenges ahead of her.

“When she’s feeling good and not in the hospital, she is an absolute joy to be around,” Alison said. “She’s so happy and smiling and funny. She can be a tad grumpy in the hospital and sometimes people don’t really get to see her true nature. She is our ‘Rea of Sunshine.’ ”

Break for breakfast: Tips for a healthy start

With the school under way, your child may be in a hurry to get ready in the morning – and that includes trying to fit in time to eat breakfast and pack a lunch.

Since diet plays a huge role in childhood obesity, it’s important to make sure a child is eating right even when you’re not there to supervise or cook. Four out of five kids from 12 to 19 years old have “poor diets” – high in salt and sugar-sweetened beverages and low in fruits, vegetables, fiber and lean protein.

In Minnesota, nearly one out of four kids has weight problems. Among Minnesota adolescents ages 10 to 17, about 11.1 percent are obese.

Subscribe to Mighty“Beginning your day with a healthy breakfast is a good way to wake up your body and brain,” said Julie Boman, MD, a pediatrician at Children’s Hospitals and Clinics of Minnesota.

How do you make sure your child gets a healthy start? Boman weighs in with these four tips:

  1. Stock the cupboards and refrigerator with healthy choices. They can include whole grain cereal, fresh fruit, yogurt and eggs.
  2. Make it convenient. If you buy strawberries, wash and slice them up so they’re ready for your child to grab and go.
  3. Whenever possible, encourage your child to sit down and have breakfast.
  4. If your child is older, plan the menu for the week together.

Physical punishment of children not a long-term, healthy solution

(iStock photo / Getty Images)

(iStock photo / Getty Images)

Alice Swenson, MD, is a child abuse pediatrician at the Midwest Children’s Resource Center, a clinic which is dedicated to the medical evaluation of suspected child abuse and neglect.

Alice Swenson, MD

Alice Swenson, MD

There has been much conversation in the media regarding corporal punishment and physical abuse of children. We at Children’s Hospitals and Clinics of Minnesota have an obligation to protect the health and safety of all children in our community and to respond to questions about discipline and abuse. The American Academy of Pediatrics (AAP) reaffirmed its statement on discipline in 2012. The statement concludes that the purpose of discipline is to “teach or instruct” a child to prepare him or her to “achieve competence, self-control, self-direction, and caring for others.”

And while physical punishment of a child may be immediately effective in stopping an unwanted behavior, it is less useful in the long term. Spanking or hitting a child “models aggressive behavior as a solution to conflict and has been associated with increased aggression” in children. In addition, parents who resort to physical discipline are more likely to escalate the severity of the punishment in order to continue to achieve the desired effect, resulting in serious injury and abuse. We share the position of the AAP, that physical punishment of a child is not the optimal approach to discipline.

Additional resources and information: