Like most little girls, Reagan Robertson of Frederic, Wis., has a healthy list of her favorite things. Not surprisingly, Disney princesses and baby dolls rank high on her list. But you can also add dance parties, horses, puppies, kitties, fingernail polish and bike rides with her dad to that list.
A brave, sweet girl, Reagan already has been through a lot in her young life.
It was Oct. 17, 2013, when doctors first mentioned “leukemia” to her parents, Alison Lake and Allen Robertson. When a subsequent bone marrow biopsy didn’t confirm the disease, the Robertsons stayed in the hospital for eight days while the doctors tried to pinpoint her exact condition. Eventually, the Robertsons were sent home with “pre-leukemia” until Nov. 8, when acute myeloid leukemia was confirmed.
Reagan completed her initial treatment April 1 (four rounds of chemotherapy with each round averaging 25 days inpatient and 12 days at home). Then, on May 16, she relapsed. She had an additional two rounds of chemo. If these rounds of chemo put her into remission, she’ll be getting a bone marrow transplant, hopefully, this month.
Alison is appreciative of the care they receive from Dr. Jawhar Rawwas and the staff at Children’s.
“I feel like the oncology team cares for Reagan,” she said. “When she relapsed, they were upset for us. The doctors and nurses are very attentive and do a good job in every aspect of care.”
Reagan’s lengthy hospital stays have had an impact on her. Alison figures Reagan will be a nurse when she grows up since she regularly helps the nurses do vitals, does dressing changes on her stuffed animals and takes alcohol wipes and cleans the lines. She always helps flush her g-tube and even refers to herself as “baby nurse.”
Reagan is a fighter and up to the challenges ahead of her.
“When she’s feeling good and not in the hospital, she is an absolute joy to be around,” Alison said. “She’s so happy and smiling and funny. She can be a tad grumpy in the hospital and sometimes people don’t really get to see her true nature. She is our ‘Rea of Sunshine.’ ”