What is the Center for Bleeding and Clotting Disorders?
The center provides a full range of expertise including pediatric hematologists, nurse case managers, pediatric nurse practitioners, physician assistants and experts in social work, genetics, pharmacy, pain management, child life, and physical therapy. Conditions treated through the Center for Bleeding and Clotting Disorders include:
Inherited and acquired bleeding disorders including:
- Von Willebrand disease
- Platelet defects
- Idiopathic thrombocytopenic purpura (ITP), other inherited factor deficiencies
All types of blood clots
- Venous – deep vein thrombosis (DVT), pulmonary embolism, clots associated with central venous catheters
- Inherited clotting disorders
- Factor V Leiden
Prothrombin gene mutation, protein C, S or ATIII deficiency and antiphospholipid antibody syndrome
The center's designation as a federally funded hemophilia and thrombosis center ensures comprehensive care for patients, including evaluation, diagnosis, inpatient and outpatient treatment, and education. A special program of the Center for Bleeding and Clotting Disorders is the women and bleeding disorders program, which treats girls and young women who are carriers of hemophilia, who have von Willebrand disease, or who have other bleeding disorders.
Pharmacy factor distribution services
Children's provides outpatient and home factor distribution through a federally approved 340B program, which helps families control the cost of treating bleeding disorders by providing factor product at the lowest possible cost. Home infusion services, medication counseling, and clinical expertise are available to families. Financial advocates at Children's work with families on insurance and payor issues.