Teen hematology and gynecology program

The National Hemophilia Foundation (NHF) estimates that today more than 2.5 million girls and women in the U.S. have an undiagnosed bleeding disorder that adversely affects their lives. Research shows that young women with bleeding disorders often experience delays in diagnosis. The Teen Hematology and Gynecology Program at Children's – the only program of its kind in Minnesota – offers coordinated care for such conditions, where patients can schedule visits that include both a pediatric hematologist and pediatric gynecologist.

  • Hemophilia carrier A female who carries a genetic change for hemophilia and may experience bleeding problems.

Common symptoms of bleeding disorders in women include:

  • Periods that are very heavy
  • Easy bleeding or bruising
  • Frequent or heavy nosebleeds
  • Iron deficiency

With proper diagnoses and treatment, young women with bleeding disorders can have an improved quality of life and more safely undergo surgery, dental work, and even childbirth.

Why Choose Children's?

There are a number of reasons why you should choose Children's Hospitals and Clinics of Minnesota for treatment of your child's teen bleeding disorders.

  • The Teen Hematology and Gynecology Program at Children's is the only program in the region to address teen bleeding disorders.
  • Children's has the only pediatric gynecologist in Minnesota.
  • Program offers access to a pediatric hematologist and pediatric gynecologist in one coordinated appointment.
  • As part of Children's Center for Bleeding and Clotting Disorders, the Teen Hematology and Gynecology program belongs to a nationwide network of federally funded hemophilia and thrombosis centers.
  • Access to the latest treatment options, including Lysteda®, the first and only non-hormonal medicine approved to treat heavy menstrual bleeding.
  • Children's has more experience – more than 55 percent of children diagnosed with cancer and blood disorders in Minnesota are cared for at Children's.
  • Camp Courage, a summer camp in Maple Lake, Minnesota, for children and adolescents with bleeding disorders.

What is the teen hematology and gynecology program?

Children's Teen Hematology and Gynecology Program addresses the specific needs of young women facing bleeding disorders. Care is provided by a pediatric hematologist and pediatric gynecologist during one convenient appointment, leading to better results and improved family experience.

The Teen Hematology and Gynecology Program is part of Children's larger mission to address pediatric gynecological health. Since primary care physicians and gynecologists are rarely trained in pediatric treatments, they are often unaware of young women's special needs.

Recent studies show teens with complex health issues fare better in pediatric hospitals than in adult hospitals, even when adult hospitals follow pediatric protocols. In addition to customizing treatment protocols to your teen's unique developmental stage and diagnosis, adolescent care at Children's emphasizes physician/patient teamwork, self-care education and treatment options, and supportive peer connections.

The Children's pediatric and adolescent gynecology department, which sees patients from birth to age 18, also offers consultation regarding the use of hormonal contraceptives for the medically complex teen. Some of the complex conditions treated include:

  • Heavy and irregular menstrual bleeding
  • Menstrual disturbances including polycystic ovary syndrome and endometriosis
  • pelvic pain
  • ovarian cysts
  • abnormal development of the reproductive structures or systems
  • pediatric vulvar conditions.