The Cystic Fibrosis (CF) Center at Children's of Minnesota diagnoses and treats children in all stages of CF. Our dedication to family-centered care and education helps children and their families learn to live with CF.
CF care is a leading programs at Children's, called a cornerstone program. These are major programs meeting rigorous criteria for excellence, including clinical research, use of advanced technology, and evidence-based practice.
Care at Children's for patients with CF ranks among the top 10 programs nationally in key outcomes measured by the National Cystic Fibrosis Registry. Children's provides a continuum of care through coordinated inpatient and outpatient services, from diagnosis through long-term follow-up. The Cystic Fibrosis Center of Children's provides state-of-the art comprehensive care for children with CF.
What is Cystic Fibrosis?
CF is a chronic, progressive, life-limiting genetic disease that affects about 30,000 people in the United States. An altered gene causes cells to produce mucus that is thicker and stickier, resulting in blocked ducts which affects the function of certain organ systems.
New therapies and treatments are constantly improving life expectancy and quality of life for people with CF. In fact, 40 percent of people with CF are adults.
- Children's CF Team created a newborn screening video for parents. To view, click here.
Ongoing Cystic Fibrosis Care
The Cystic Fibrosis Center at Children's provides state-of-the art care to monitor every aspect of your child's cystic fibrosis. Care may include scheduled annual vistis; or, sometimes children with CF need to be admitted to the hospital when they are sick.
Learn more hospital and clinic visits:
L.I.F.E. with Cystic Fibrosis Education Sheets:
L.I.F.E. stands for Lifetime Involving Fitness and Exercise. The Cystic Fibrosis disease process can cause negative changes in the musculoskeletal system, therefore, fitness and exercise aids in preventing a decline in this system. Listed below are suggestions of age-appropriate exercise activities that focus on areas that are affected by CF.
Children's wins award at cystic fibrosis conference
At the North American Cystic Fibrosis Conference in Baltimore Oct 21-23, 2010, Children's was recognized with a Quality Care Award Recognizing Outstanding QI Processes and Accomplishments for sustained commitment to quality improvement resulting in improved outcomes. We were also awarded an Outstanding Partnership Award for our center's work with the Minnesota Chapter of the Cystic Fibrosis Foundation, where John McNamara, MD, serves as a member of the Board of Directors.