Children’s, PPB registry help Mankato boy
A pediatric cancer diagnosis is terrifying for any family, most certainly a young family from Mankato and their infant, first-born son.
Braydon Greiner, the son of Breanne and Brandon Greiner, was diagnosed with type 1 pleuropulmonary blastoma (PPB) lung cancer March 28, 2013, at St. Mary’s Hospital in Rochester when doctors found a cystic tumor the size of a grapefruit growing on his right lung.
“When Braydon was diagnosed with cancer our world crashed down around us,” Breanne said. “Life as we knew it changed forever. We researched PPB on the Internet and found out just how rare it is.
“Luckily, Braydon’s doctors at the Mayo Clinic told us about the PPB registry. I emailed Dr. Yoav Messinger of Children’s Hospitals and Clinics of Minnesota and we met the following week to discuss the risks, possible outcomes, available treatment plans and his experiences with similar PPB cases. Finally, our questions could be answered.”
Braydon turns 2 this month. He receives a chest x-ray every three months and a CT scan every six months to monitor the two type 1r cysts that remain in his lung. If the cysts show growth, he will start a chemotherapy regimen and possibly have surgery to remove them.
“We could not be more pleased with the care Braydon has received from Dr. Messinger, Gretchen Williams and the staff at Children’s,” Breanne said. “The communication between Dr. Messinger and Braydon’s primary physician, Dr. Smentek, in Mankato is impeccable. With PPB being such a rare cancer, we find comfort knowing that Braydon is being cared for by the leaders of The International PPB Registry.”
An adorable bundle of energy who could melt your heart in seconds, Braydon loves to play catch with his dad and fetch with his puppies. He also loves to zoom his cars around the house. His favorite thing to do is go for bike rides to the park so he can go down the slide. He is true fighter and inspiration.
“I expected the PPB registry to be a research group that wanted to look over Braydon’s files and have access to his charts,” Breanne said. “But the PPB registry does so much more than that; it also brings PPB families together. The PPB registry helped a young, frightened family feel assured that ‘everything will be OK.’ We truly can’t thank you enough.”