#AmazingIs Stories, Mighty Blog

Mom grateful for Children’s care before, after daughter’s double lung transplant

by Janice Eason

My dreams came true 8½ years ago when I became a mother to Kali Grace, the most beautiful baby girl. But little did I know how many people I would need to keep my dreams alive.

My water broke at 22 weeks, and Kali had to be delivered at 24 weeks. She came into this world weighing 680 grams, less than 1½ pounds, and with underdeveloped lungs. Before I could even see her, she was whisked away to the neonatal intensive care unit at Children’s Minnesota, where she would spend the first eight months of her life.

Kali's baptism
Kali’s baptism

Kali was always one of the most critical patients on the unit and liked to keep all of her doctors, nurses and therapists on their toes to be sure they could handle anything. Her team did handle everything and more that Kali gave them. She was cared for greatly, and everything was done to be sure Kali was always getting what she needed. And her team always made sure that as her mother I was heard.

I was told that Kali would need to go home for hospice care if she didn’t receive a double lung transplant. We found a transplant center in Houston to perform the difficult surgery do the transplant. After a delicate recovery period, we came back home just after Kali celebrated her first birthday.

While there were other hospitals, doctors and nurses that helped care for Kali, Children’s, including the team at the Kiran Stordalen and Horst Rechelbacher Pediatric Pain, Palliative and Integrative Medicine Clinic, always has been the place where we received the best and greatest care.

Kali is 8 now, but we have never been far from Children’s. We’re here multiple times a month for appointments and have a few hospital stays a year dealing with Kali’s ongoing conditions.

The Children’s staff have made Kali feel so comfortable with all she has to deal with in her life, and she loves everyone at the hospital who cares for her. I feel so blessed to have such a wonderful place to call our second home that is able to make my child feel like such a normal girl given all of her circumstances. We forever will be thankful to everyone who makes Children’s such an amazing place.

Kali continues to visit Children's for checkups on a regular basis.
Kali continues to visit Children’s for checkups on a regular basis.