In summer 2016, the Twin Cities will be the center of the hydrocephalus universe when it hosts the Hydrocephalus Association’s biennial national conference in Minneapolis. But on Saturday and Sunday they get a head start.
The Minnesota-Twin Cities Walk and Networking Weekend for hydrocephalus, a chronic condition caused by an excessive buildup of cerebral spinal fluid (CSF) in the brain, takes place Sunday at the Mall of America in Bloomington. Children’s Minnesota and its neurosurgery program are sponsors of the event.
Check-in for the walk is 7 a.m., kickoff is at 8 and the walk starts on the first floor at 8:15. There is a pre-walk networking event from 5-9 p.m. Saturday on the fourth floor in the Mall of America’s Executive Suites near the Skydeck.
11 facts about hydrocephalus (from the Hydrocephalus Association):
- One million Americans live with hydrocephalus.
- Brain surgery related to hydrocephalus is performed every 15 minutes.
- Each year, hydrocephalus is the cause of more than 39,000 brain surgeries.
- For people living with hydrocephalus, the only cure for a headache is brain surgery.
- Anyone at any age can develop hydrocephalus.
- The only treatment for hydrocephalus is brain surgery.
- Hydrocephalus is the most common reason for brain surgery in kids.
- NPH (normal pressure hydrocephalus), usually developed later in life, often is misdiagnosed as Alzheimer’s disease.
- Many troops who suffer a traumatic brain injury while serving eventually develop hydrocephalus.
- Hydrocephalus is a lifelong condition; it can’t “go into remission.”
- There is no cure for hydrocephalus.
How you can help
September is Hydrocephalus Awareness Month. This year the Hydrocephalus Association launched a campaign called “Turn the Country Hydrocephalus Blue!” to help raise awareness.