In 2021, Maddy was diagnosed with restrictive cardiomyopathy. It’s the rarest of the three main types of cardiomyopathy in children. The condition means the chambers of Maddy’s heart have become stiff, making it harder for her heart to fill with blood between heartbeats. At first, Maddy was cared for at the Mayo Clinic in Rochester, where doctors initially determined she needed a heart transplant. After a couple weeks, the family asked to transfer to Children’s Minnesota to be closer to their home in Buffalo, Minnesota, and so Maddy could be at a hospital focused exclusively on caring for kids. Maddy arrived in April 2022.
After waiting nearly six months, Maddy received a heart transplant at Children’s Minnesota in August of 2022!