Collaborations and projects
The work done through Children’s Minnesota Research Institute is inspired by the children, families, and providers on the front lines of care in the organization. We collaborate to pursue research inquiries in the spirit of championing the health of children not only in our hospitals and clinics, but far beyond. The projects we partner on contribute to advancing clinical practice in areas ranging from well child visits to the emergency department to oncology. We work to shine a spotlight on Children’s as a leader in providing, improving, and innovating pediatric health care.
Some of our valued partnerships include:
The Midwest Fetal Care Center was formally established in 2008 as a collaboration between Children’s Minnesota, Abbott Northwestern Hospital and Minnesota Perinatal Physicians, along with Pediatric Surgical Associates and other consulting subspecialists for the diagnosis, consultation and treatment of fetuses with developmental abnormalities. Midwest Fetal Care Center is part of the North American Fetal Therapy Network (NAFTNet), an association of medical centers with proven expertise in fetal surgery and other fetal care services. Our fetal specialists are active in national fetal therapy associations and have been published in peer-reviewed medical journals.
Children’s Minnesota, along with five other children’s hospitals, has signed an agreement to form the Sanford Children’s Genomic Medicine Consortium, a collaboration of children’s hospitals working to advance pediatric genomic medicine. In addition to setting a new standard for the clinical practice of personalized medicine in children, the consortium will also improve pediatric care through innovative joint research programs and genomic health care workforce development. The combined research capabilities of the member hospitals will expedite genetic and genomic discovery through economies of scale and access to a large, racially and ethnically diverse population. The consortium serves as a focal point for developing relationships with industry and government entities and provides shared training opportunities for physicians, genetic counselors, nurses and other health professionals.
In addition to Children’s Minnesota, founding members include Sanford Children’s, Children’s Hospital Los Angeles, Rady Children’s Hospital-San Diego, Children’s Hospital Colorado, and Banner Children’s at Diamond Children’s Medical Center, Tucson, Arizona.
Many of Children’s sponsored projects partner with funders and communities to address health disparities, increase access to preventative care and support health literacy:
The Minnesota Perinatal and Pediatric HIV Program
Contact: Alissa Fountain, Supervisor HIV Program
This program provides care and prevention services to women, children, youth and their families living with HIV across the state of Minnesota. We collaborate with OB/GYN clinics, infectious disease clinics, and labor and delivery centers to coordinate care for pregnant women, provide education on perinatal HIV transmission reduction strategies, and create delivery plans to ensure that women and babies are well cared for throughout their pregnancies and deliveries.
Our case management program focuses on ensuring access and linkage to specialty medical care, insurance, financial programs, transportation assistance, and social support. We frequently partner with the Youth in AIDS Program, Minnesota AIDS Project, Open Arms, Aliveness Project, Second Stork, Cradle of Hope, Ahavah Doula Services, Everyday Miracles, and county benefit centers throughout the state to connect clients to resources.
The Midwest Children’s Resource Center is a child advocacy center (CAC) and clinic within Children’s Minnesota. They offer medical evaluations and case management in alleged child abuse cases, serious neglect and witness to violence. The program at MCRC has multiple components: A medical clinic at Children’s – St. Paul, a child advocacy center (CAC), governed by the National Children’s Alliance (NCA), an accreditation we’ve held since 1994, and connection with community resources to provide a team approach for child abuse cases.
Midwest Regional Children’s Advocacy Center (MRCAC)
Contact: Kori Stephens, Project Director – [email protected]
MRCAC is one of four regional children’s advocacy centers in the United States that supports the work we do in caring for kids who’ve been abused or neglected. They use a video conferencing format for education and case review through MRCAC to connect with other centers throughout the country that share the same commitment and child-centered approach that we do. This network gives them access to nationally-recognized experts in the field who are performing the newest, best and most respected research on issues our patients face every day.
Development of novel pediatric diabetes education materials for Somali immigrants
Contact: Jennifer Kyllo, MD – [email protected]
A joint collaboration with the University of Minnesota aimed at developing and pilot testing an innovative, oral, video-based, patient-as-educator Type 1 Diabetes education program tailored to Somali immigrant families, taking into account such factors as parent literacy and numeracy level, culture, and religion. Somali parents and patients from both centers participated in workgroups along with Children’s and UMN endocrinologists, diabetes educators, dietitians, and a Somali coordinator to help determine areas of focus for the educational materials. In addition, we have been working with dietitians to develop visual carbohydrate counting materials (booklet with photos, video), specific for foods in the traditional Somali diet. The development of the video education program is ongoing, and the final phase of the study will involve piloting the video education program on a different group of Somali T1D patients and parents followed at UMN and Children’s, who have previously received standard ADA T1D education and to assess improvement in diabetes knowledge as measured before, immediately after, and 3 months after participating in the program.