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Articles
- Asthma Inhalers
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Balancing Academics and Serious Illness
(Spanish)
- Blood Transfusion Information
- Blood Transfusion: Care at Home
- Body cooling
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Camps for Kids With Special Needs
(Spanish)
- Cardiac conditions: Care at home
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Cardiofaciocutaneous Syndrome
(Spanish)
- Central Line (Tunneled): Care at home
- Central Line Associated Bloodstream Infection (CLABSI) Prevention
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Chemotherapy
(Spanish)
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Chronic Fatigue Syndrome
(Spanish)
- Colostomy: Care at Home
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Congenital Heart Defects
(Spanish)
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Costello Syndrome
(Spanish)
- Cystic Fibrosis and Nutrition
- Cystic Fibrosis: Huff-Cough
- Cystic Fibrosis: Nebulizer treatments
- Dental care with a bleeding disorder
- Does My Child Need an Antibiotic? (Video)
- Drinking liquids: Helpful hints for you and your child
- DualCap Solo use at home
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Electronic Health Records
(Spanish)
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End-of-Life Care for Children With Terminal Illness
(Spanish)
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Extracorporeal Membrane Oxygenation (ECMO)
(Spanish)
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Factor concentrate at home
(Spanish)
- Fecal pouch emptying
- G-Tube: Parents Talk (Video)
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Giving Teens a Voice in Health Care Decisions
(Spanish)
- Gross Motor Function Classification System
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Head Injury with a Bleeding Disorder
(Spanish)
- How to give factor concentrate at home (video)
- Ileostomy: Care at home
- Immunizations for children with a bleeding disorder
- Implanted Port: Care at Home
- Inhalers
- Injections (subcutaneous)
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Is a Clinical Trial Right for Your Child?
(Spanish)
- Is My Child Too Sick to Go to School?
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Legius Syndrome
(Spanish)
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Managing Home Health Care
(Spanish)
- Mobility changes: Helping Children Cope
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Mouth bleeding with a bleeding disorder
(Spanish)
- Munchausen by Proxy Syndrome
- Nasogastric (NG) Tube Feeding
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Nebulizer
(Spanish)
- Neurocutaneous Syndromes
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Neurofibromatosis Type 1
(Spanish)
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Nosebleed treatment with a bleeding disorder
(Spanish)
- Occupational Therapy
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Oxygen safety at home
(Spanish)
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Palliative Care
(Spanish)
- Peripheral Intravenous Line (PIV): Care at Home
- Peripherally Inserted Central Catheter (PICC): Care at Home
- Physical Therapy
- Preventing falls at home
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Radiation Therapy
(Spanish)
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RASopathies
(Spanish)
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Sanfilippo Syndrome
(Spanish)
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Sending Your Child With Special Needs to Camp
(Spanish)
- Sickle cell pain control
- Skin care for a child with limited mobility
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Speech-Language Therapy
(Spanish)
- Spina Bifida
- Suctioning
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Support for Parents of Kids With Special Needs
(Spanish)
- Taking Care of You: Support for Caregivers
- Tracheostomy: Parents Talk (Video)
- Urinary catheter (indwelling): Care at home
- Urinary catheter irrigation
- Vest therapy
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When Your Baby Has a Birth Defect
(Spanish)
- When Your Baby’s in the NICU
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When Your Child's in the Pediatric Intensive Care Unit
(Spanish)
- Words to Know: Transplants