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Cystic Fibrosis

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Nikki’s lifelong fight with cystic fibrosis: a story of resiliency

Nikki was diagnosed with cystic fibrosis (CF) at the age of 5 and has been fighting through it since. Nikki is now 48 and credits this to Children's Minnesota. "Children's Minnesota helped set the foundation for me to live longer than expected."

Children’s Minnesota social worker sets international mental health care standards for PCD patients

Over her nine years at Children’s Minnesota, Tami Vance, LICSW, cystic fibrosis (CF) and primary ciliary dyskinesia (PCD) programs, not only shines as an outstanding social worker inside our walls, but she’s also an expert voice and advocate for PCD mental health care internationally.

Cystic Fibrosis

The cystic fibrosis program at Children’s Minnesota ranks among the top 10 programs nationally in key outcome measures by the Cystic Fibrosis Foundation Patient Registry.

What is new in cystic fibrosis research at Children’s

January 13, 2016, 12 p.m. – 1 p.m., Minneapolis

For Health Professionals

Children's Physician Access is available 24/7 with a representative on the line throughout the call to assist with referrals, consultations and admissions and to provide general information.

Locations and Contact Us

Visiting us? Get all the information you need to get to our locations and contact us.


We know you may want to dig for more information, so we gathered these easy-to-digest materials and resources from pediatric organizations in Minnesota and beyond.

What to expect

Kids with cystic fibrosis (CF) need special care. This genetic disease can cause problems with many systems in the body, including the lungs, sinuses, digestive and reproductive systems, and sweat glands. With the right care, your child can live a busy, productive life.

Meet the team

The cystic fibrosis (CF) team at Children's Minnesota includes a wide range of experts with several years of experience in diagnosing and treating children and adolescents with CF. We know CF and we know kids — it's a winning combination.

Outcomes and Research

Choosing where to bring your child for cystic fibrosis (CF) care is a major decision. You need all the information you can get. We know you want it in a clear, straight-forward form that helps you make the right choice for your family.