Outcomes and Research
At Midwest Fetal Care Center, our team is committed to research as well as improving outcomes for moms and babies facing high-risk pregnancies.
Midwest Fetal Care Center is part of the North American Fetal Therapy Network (NAFTNet), an association of medical centers with proven expertise in fetal surgery and other fetal care services. Our fetal specialists are active in national fetal therapy associations and have been published in peer-reviewed medical journals. Members of our multidisciplinary care team regularly generate national research abstracts related to the clinical protocols and algorithms that we create.
Through Institutional Review Board (IRB) funding, we are advancing research and knowledge in the following areas related to our top diagnoses:
- Congenital lung malformations
- Congenital diaphragmatic hernia (CDH)
- Single ventricle cardiac disease
- Twin-to-twin transfusion syndrome (TTTS)
Our ability to track the short- and long-term clinical outcomes of mothers and their babies is critical to measuring the impact of early fetal intervention. Within the existing network of advanced fetal centers, the REDCap Database is the primary internet-based, HIPAA-compliant tool that facilitates consistent data tracking and outcomes measures, with capabilities to produce custom and standard reports. Midwest Fetal Care Center tracks clinical information using REDCap.
- Targeted data collection for top diagnoses
– CDH, TTTS, gastroschisis, single ventricle and congenital lung lesions
- Measuring prenatal markers to risk stratify our patients
– CCAM volume ratio (CVR)
– Lung to head ratio (LHR)
– Tumor Volume ratio (TVR)
– Omphalocele ratio
Learn more about the conditions we treat and services we offer.