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Spring 2024

Volume 3, Issue 2

in this issue

Navigating Facts and Values

Wolfe, ID

Parents' Perspectives on Values and Values Conflicts Impacting Shared Decision Making for Critically Ill Neonates

Chris Krenz, Boston University College of Engineering in Boston, Massachusetts. Kayte Spector-Bagdady, University of Michigan Medical School. Raymond De Vries, University of Michigan Ann Arbor. Stephanie Kukora, University of Missouri-Kansas City School of Medicine at Children’s Mercy Kansas City

A Narrative Experience with Adolescent Genetic Testing

 

Difficult to Swallow: Epidermolysis Bullosa, Esophageal Stricture, and the Boundaries of Forgoing Medical Nutrition and Hydration

A Day in the Life of a Pediatric Intensive Care Unit Nurse

Jamie Newton, Children’s Mercy Kansas City

Give to Kids Day

Today is Give to Kids Day!

A day for our generous community to join together to ensure that even the tiniest hearts get the strongest possible start.