Education materials and other resources

We know you may want to dig for more information, so we gathered these easy-to-digest materials and resources from pediatric organizations in Minnesota and beyond.

Patient and Family Education Materials If you need quick, clear info about a kids’ health topic, we have it all

Bones, Muscles and Joints Use of some antiepileptic drugs can lead to bone thinning. Here’s how you can keep your child’s bones strong.

Bone health and epilepsy: Are your bones brittle? Tips on preventing bone thinning associated with some seizure medications.

Brand vs. generic seizure medications Branded medications cost more. But are they more reliable?

Concussion, traumatic brain injury and seizures More about the link between head trauma and epilepsy.

Devices for epilepsy Learn about some advanced treatments for when epilepsy can’t be controlled with medication.

Electroencephalogram How to prepare your child, plus tips for keeping kids happy and relaxed during the test.

Electroencephalogram (ambulatory) Tips to get ready for an extended EEG in which your child wears a recording device overnight.

Electroencephalogram Instructions (ambulatory) How to record your child’s activities and indicate any seizure activity during the test.

Facts on genetics and epilepsy Find out what types of epilepsy are inherited and the role of genes in seizure disorders.

Genetic conditions Read up on what they are and how they’re passed from parent to child (Hmong, Somali, and Spanish translations available at link).

Hormones and seizures in women with epilepsy Learn how the menstrual cycle can affect seizure activity.

How to prepare for an EEG What it is, why it’s done and what you can do to ensure a high-quality recording.

Information on New Onset Seizure Activity Find out what should be done after your child’s first seizure.

Magnetic resonance imaging (MRI) What it is, what to expect and how to help your child before and during the procedure.

Migraine and epilepsy Read up on the possible link between these neurological conditions, plus what it means for your child’s treatment.

New antiepileptic drugs Get the inside scoop on two promising new drugs recently approved by the FDA.

Phenobarbital Get the facts on this common seizure medication.

Relative safety of seizure medications during pregnancy New findings from the North American Antiepileptic Drug Pregnancy Registry.

Seizures First aid instructions, plus when to seek medical help or emergency care (Hmong and Spanish translation available at link).

Sudden unexpected death in epilepsy (SUDEP) What it is, plus suggestions for prevention.

Surgery for epilepsy may improve intellectual function in children Results of one long-term study suggest significant benefits from this approach.

Surgery for epilepsy sooner rather than later Read why surgery shouldn’t necessarily be a treatment of last resort.

Switching from one generic seizure medication to another Why this practice may be riskier than doctors once thought.

The latest stem-cell therapy and epilepsy Discover a promising treatment that may be available in the future.

Tuberous Sclerosis Complex Learn about this genetic disorder, which is often accompanied by seizures (also in Hmong, Somali and Spanish).

Video electroencephalogram (EEG) [Inpatient] Read up on this procedure that records brain activity and physical activity at the same time.

Video electroencephalogram (EEG) [Outpatient] How to prepare for a video EEG performed at the doctor’s office.

Get help or get involved

The following organizations offer loads of resources to improve quality of life for kids with epilepsy and their families, including educational materials, support groups, assistance programs and referrals:

American Epilepsy Society
860-586-7505

Camp Oz
800-779-0777 and 651-287-2300

Epilepsy Foundation of America
800-332-1000

Epilepsy Foundation of Minnesota
800-779-0777 and 651-287-2300

North American Antiepileptic Drug Pregnancy Registry
888-233-2334

National Association of Epilepsy Centers
202-484-1100 x17

Tuberous Sclerosis Alliance
800-225-6872 and 301-562-9890

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