We met Declyn in December 2019 when he was 16 months old. When Declyn’s mom was still pregnant, she found out that she would need to undergo fetal surgery at only 24 weeks in order to repair an opening in Declyn’s spine. Now, Declyn is 3 years old and his smile lights up a room. Let's catch up!
Pregnancy is an exciting and anxious time for many. When Trina and Bak Bak found out they were expecting, they took it one day at a time and approached it with their usual easy-going demeanor, even in the midst of a pandemic.
Congenital heart disease is a heart problem that develops in the womb, before a baby is born. The word congenital means “present from birth.” Many different heart problems are associated with congenital heart disease, from holes in the walls of the heart to more severe defects, such as underdeveloped pumping chambers. These problems can affect the structure, function, and/or rhythm of the heart and therefore interfere with the normal flow of blood through the baby’s body. Congenital heart disease is the most common type of birth defect. Each year, about 40,000 babies are born in the United States with a heart problem. One in four of these babies have critical congenital heart disease, a condition serious enough to require surgery or other medical procedures during their first year of life.
A multiple pregnancy is a pregnancy with two or more babies. In some multiple pregnancies, the babies develop from different eggs (fraternal); in others, they develop from the same egg (identical). When the babies are fraternal, each has a separate placenta (whose fetal part is called the chorion) and separate amniotic sacs. These are known as dichorionic-diamniotic twins. The babies may be boys, girls, or a combination of both. Like siblings born from different pregnancies, these babies may (or may not) look very similar to each other. Depending on when the fertilized egg splits, identical twins may also be dichorionic-diamniotic. Usually, however, the babies share a placenta and have separate sacs. These are known as monochorionic-diamniotic twins. About 75 percent of all identical twins fall into this category. In rare cases, identical babies share both a single placenta and a single amniotic sac. These are known as monochorionic-monoamniotic twins. Because all identical babies share the same genetic material, they will be of the same gender and look alike, although they will have different personalities.
Fetal anemia is a condition in which a baby’s red blood cell volume falls below normal levels while the baby is developing in the womb. The condition may occur because not enough red blood cells are being produced or because they are being destroyed faster than they can be made. Red blood cells contain hemoglobin, which are molecules that carry oxygen throughout the body. The cells and organs of a developing baby need sufficient amounts of oxygen for nourishment.
The parents are grateful for the partnership between her doctors in Fargo and the Midwest Fetal Care Center in the Twin Cities.
Renal agenesis (REE-nall ay-JEN-eh-sis) is a condition in which one or both kidneys fail to form while a baby is developing in the womb. When only one kidney forms, the condition is known as unilateral renal agenesis. When neither kidney forms, it’s known as bilateral renal agenesis. Unilateral renal agenesis occurs in about 1 in 2,000 births. Bilateral renal agenesis is more rare, occurring in about 1 in 4,000 births. Both conditions are about three times more common among boys than among girls.
The Midwest Fetal Care Center (MWFCC) team is attending the Society for Maternal Fetal Medicine’s (SMFM) 40th annual pregnancy meeting in Grapevine, Texas, from Feb. 3-8, 2020. This annual meeting is a place for leaders and colleagues in maternal-fetal medicine get together and learn about cutting-edge obstetrics updates through workshops, forums and presentations.
In 2016, our center performed our first fetal repair of myelomeningocele (MMC), the most severe form of spina bifida. Led by a team of medical experts in the field of fetal diagnosis and therapy, our program has grown to become a high volume MMC fetal surgery center. As of January 2020, the Midwest Fetal Care Center has evaluated more than 52 women from across the Upper Midwest for fetal MMC repair; 37 of these patients met fetal surgery criteria, and 33 chose to undergo open fetal MMC repair.