Resources for families with children facing cardiovascular disease
At Children’s Minnesota, we recognize the challenges that families with children affected by cardiovascular conditions encounter. We’ve curated a selection of valuable resources to support you on this journey. Whether you’re seeking educational materials on congenital heart disease or local assistance, explore the options below:
- Midwest Fetal Care Center A collaboration between Allina Health and Children’s Minnesota, the Midwest Fetal Care Center (MWFCC) offers mothers with high-risk pregnancy and babies with complex conditions a continuum of care that is among the best in the nation. Learn more about MWFCC and the conditions they treat.
- American Academy of Pediatrics You’ll find information on a wide range of children’s health and family life issues here.
- American Heart Association The extensive website of this well-known national organization has sections on cardiovascular conditions of childhood and congenital heart defects. The Minnesota chapter also posts local events and news.
- Centers for Disease Control and Prevention This federal agency’s vast website has a section devoted to congenital heart defects.
- Patient and Family Education Materials If you need quick, clear info about a cardiovascular topic, we have it all!
- Camp Odayin This non-profit offers fun, safe and supportive camp experiences and community building opportunities for young people with heart disease.
- Family Resource Centers Looking for a peaceful haven to get comfy and read? Visit the Family Resource Centers at Children’s. Use our library, access the Internet or just escape for a few quiet minutes while your child is in the hospital.
- Mended Little Hearts This organization provides support for parents of children born with heart defects.
- Parents For Heart This organization provides mutual support and education to parents of children with cardiovascular disease.
The Children’s Heart Clinic release forms
We take every precaution to ensure that the rights and privacy of our patients are protected. To ensure the privacy of patients and their families, and to comply with federal regulations, parents or guardians must sign a release of information form to receive a copy of your medical records (if over 18) or your child’s medical records.
- Digital medical records release form
- PDF medical records release forms:
The Children’s Heart Clinic privacy policy
The Children’s Heart Clinic and Children’s Minnesota handle health information carefully and maintain your privacy. We are dedicated to delivering the best care, along with a positive experience, and want you to know about the rights and responsibilities you have when your child is in our care. View our privacy policy.
