Thalassemia Care

Your child has just been treated for pain. We take pain very seriously and would like to help you in your effort to keep your child as comfortable as possible.

While your child has been here, he or she has been receiving fluids through an IV. While your child is at home, make sure that he or she drinks fluids. Extra fluids can help with manage pain. While the pain continues, have your child drink about double the normal amount.

Child’s weight:

Fluid amount while in pain          cups (8 ounces) in 24hours

Child’s Weight in Pounds	Number of 8-ounce cups per day
10 lb.	2 cups
15 lb.	3 cups
20 lb.	4 cups
25 lb.	5 cups
30 lb.	5 to 6 cups
35 lb.	6 to 7 cups
40 lb.	7 cups
50 lb.	8 cups
60 lb.	9 cups
More than 60 lb.	10 or more cups

Fluid includes more than water, it is any clear liquid. Examples are juice, ice chips, soup broth, pop, jello, popsicles.

Medications:

It is important to continue with pain medication as directed by your health care provider while the pain continues.

Other pain relief methods:

Warm Baths

Warm moist towels or a heating pad. Make sure the towels or heating pads are warm, not hot. Check often to make sure the skin is not becoming too warm or burning.

Massage

Some children feel that a gentle massage to the area that hurts is helpful. Relaxation and distraction: Quiet games or stories may help your child focus on other things. Sometimes comforting music or videos can help.

Call (612) 813-5940 to be seen immediately:

• Fever 101.5 or higher
• Severe headache, dizziness
• Problems with breathing or chest pain
• Severe stomach pain or swelling
• Painful erection of the penis
• Any type of seizure
• Weakness or inability to move a portion of the body

If you are unable to contact your provider go to the emergency room.

Call (612) 813-5940 for advice as soon as possible:

• If your child vomits and is unable to keep down the medications and/or fluids
• If your child develops diarrhea
• If the pain continues longer than 72 hours or is increasing
• Any other concerns

If you call after clinic hours, ask the answering service to have the provider on call return your call.

___ Send home with family, Home Management of Pain in Patients with Sickle cell

___ Family has medications (list)

 

___ Family has been sent home with written prescriptions

___ Family has been sent home with medications

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