Lennox-Gastaut syndrome is a rare type of intractable epilepsy. Children with the condition will have:
Lennox-Gastaut (LEN-eks gas-TOE) syndrome begins when kids are 3 to 5 years old. It's a lifelong condition that requires a high level of care.
There are different seizure types in Lennox-Gastaut syndrome. They can cause a variety of symptoms.
Tonic seizures:
Atonic seizures:
Other types:
Lennox-Gastaut syndrome can be caused by multiple conditions. For example, early brain injury from infection or trauma, gene mutations, or problems with the way the brain was formed before birth all can lead to the condition. Sometimes, it has no clear cause.
A pediatric neurologist (a doctor who treats brain, spine, and nervous system problems) can diagnose the condition by doing tests such as:
Seizures in Lennox-Gastaut syndrome are typically intractable and don't usually respond well to medicines. (Intractable means "not easily managed or relieved.") Medicines doctors try include:
Other treatments include:
Caring for a child with Lennox-Gastaut syndrome can be challenging. Work with your child's care team to set up needed medical visits and therapies. Work them to create a treatment plan that provides your child with a good quality of life.
Make sure that you and other adults and caregivers (family members, babysitters, teachers, coaches, etc.) know what to do during a seizure. Your child may need to wear a helmet to prevent head injury during seizures.
If your child has Lennox-Gastaut syndrome, your doctor and the care team can answer questions and offer support. They also might be able to recommend a local support group. Online organizations can help too, such as:
Note: All information is for educational purposes only. For specific medical advice, diagnoses, and treatment, consult your doctor.
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