The wait times in our emergency departments are longer than usual due to illnesses like RSV and the flu. View our estimated ED wait times and learn more about where to get care for your sick child.

Neurocutaneous Syndromes

Overview

The neurocutaneous syndromes clinic at Children’s Minnesota works with families and patients to diagnose and provide personalized care that may include genetic testing, clinical monitoring or consultations with other pediatric experts.

  • Neurofibromatosis, type 1 (NF1)
  • Neurofibromatosis, type 2 (NF2)
  • Legius syndrome
  • Schwannomatosis
  • Unilateral vestibular schwannoma
  • Tuberous Sclerosis Complex (TSC)
  • Von Hippel Lindau syndrome (VHL)
  • Incontinentia Pigmenti
  • Hereditary hemorrhagic telangiectasia (HHT)
  • Cutis marmorata telangiectatica congenita (CMTC)
  • Sturge-Weber syndrome
  • Xeroderma Pigmentosum
  • Genetic counseling and testing
  • Communication and collaboration with members of the child’s health care team, including primary care physician
  • Assistance with school and insurance concerns
  • A networking and support group for families affected by Neurocutaneous Syndromes such as Neurofibromatosis and Tuberous Sclerosis. Contact Elizabeth Siqveland at 612-813-7078
  • Patient Name
  • DOB
  • Referring provider
  • Primary care provider
  • Insurance information
  • Diagnosis and isolation requirements
  • Special needs requirements
  • Patient’s city and state

24/7 access to referrals, consults and admissions. Learn more.
Intended only for health care providers. Patients, please contact your doctor directly.