Resources for patients and families in palliative care
Education is the first step to medical decision-making. To help, we have compiled the following resources:
- Courageous Parents Network: Why pediatric supportive care/palliative care is necessary and beneficial for your child
- Basic approaches to decisions: This brochure guides you through the information you need to make difficult decisions during this challenging time.
- Decision-making with teenagers: Find out how you can face these difficult decisions about life and treatment with your teenager
- Including children in decisions: Read about how you can involve your child when making decisions in an age and developmental-appropriate way
- Medically provided nutrition and hydration: Learn about the discussion on providing nutrition and hydration at the end of life
- Allow natural death and do not resuscitate decisions: Understanding what these terms mean and what’s right for your child can help your family make the best choice should you need to
- Thinking about organ transplants: Could this be the best decision for your family if the time comes?
- Developmental considerations for conversations about death: Considerations about how to include kids of different ages in conversations about approaching end of life
- Recommended books for children grieving the death of a loved one: What to read together after a loss
- Children’s Minnesota’s Bereavement Services and Grief Support
