Education materials and other resources

We know you may want to dig for more information, so we gathered these materials and resources from organizations in Minnesota and beyond. There are so many excellent resources for families we could not include them all. We will be happy to provide additional resources upon request or at your visit with the genetic clinic.

Patient and Family Education Materials

Visit the Down Syndrome Association of Minnesota.

Learn how the Autism Society of Minnesota can help your family.

Services are available at the Minnesota Autism Center.

The Angelman Syndrome Foundation can provide information to families.

Find out about activities that support cystic fibrosis research through the Cystic Fibrosis Foundation.

Connect with other parents of children with cardiovascular conditions at Parents for Heart.

Learn more about VCF/Digeorge/22q Deletion Syndrome at the Velo-Cardio-Facial Syndrome Education Foundation or the International 22q11.2 Foundation.

Get information about Neurofibromatosis (NF) at The Children’s Tumor Foundation or connect locally with other families.

Learn more about Marfan Syndrome.

Get information about Prader-Willi Syndrome.

Little People of America (LPA) is an organization that provides support and information to people of short stature and their families.


At Children’s Minnesota, we know how important reliable information about conditions and illnesses is.