The Center for Bleeding and Clotting Disorders

The Center for Bleeding and Clotting Disorders provides a complete range of care for children and adolescents with bleeding and thrombotic (clotting) disorders. Children’s Minnesota belongs to a nationwide network of federally funded Hemophilia Treatment Centers (HTCs) and is the only such program in the region focused solely on pediatrics. This designation ensures that children and adolescents receive comprehensive care from a team of pediatric experts in bleeding and clotting disorders.

Comprehensive care is a systematic, multidisciplinary team approach that provides services in a coordinated, proactive manner to improve the health and quality of life for people with bleeding and clotting disorders. The HTC comprehensive care model has a proven record of improving health and reducing costs by lowering rates of emergency room visits, hospital stays and illness-related time off from work and school. The program has strong collaboration with community, regional, and national services and resources for these children and their families. In addition, summer camp, parent support groups, and family retreats are supported by the HTC.

Children’s Minnesota has created a special approach to bleeding and clotting disorders that address the special needs of children and adolescents through its Center for Bleeding and Clotting Disorders.

  • The Center for Bleeding and Clotting Disorders at Children’s Minnesota is part of the Cancer and Blood Disorders program, which is the largest program in the state and treats more than 1,000 children with blood disorders each year.
  • Only federally funded, pediatric Hemophilia and Thrombosis Center in the region, which ensures comprehensive care for patients. Children’s treats more than 80 percent of children and teens in Minnesota with a hemophilia diagnosis.
  • Factor product provided to patients at a low cost through a federally approved 340B program and distributed via outpatient clinic and home delivery.
  • Children’s Minnesota has the only teen hematology and gynecology program in Minnesota.
  • A CDC study shows the rate of hospital stays for bleeding-related events among patients seen in federally recognized HTCs was 40 percent lower than the rates of patients seen in other care facilities.
  • At Children’s Minnesota, we provide consultation services for children who are not seen in our program but would like input from our expert team. If you or your child’s doctor would like us to review your child’s case, you may arrange to have health records and test results for your child sent to us. The child does not need to live in the area or be seen in our clinic.
Storycorps

hemophilia & sickle cell podcast series

Listen in as kids and families share their stories about living with hemophilia and sickle cell disease.