Cystic fibrosis experts
The cystic fibrosis (CF) team at Children’s Minnesota includes a wide range of experts with several years of experience in diagnosing and treating children and adolescents with CF. We know CF and we know kids — it’s a winning combination.
Our CF team includes several dedicated specialists:
- Pediatric pulmonologists are doctors who specialize in treating children’s lung problems. At Children’s, we have a large group of pediatric pulmonologists on the CF team.
- Advance practice nurses have additional education and training in working with children who have special needs. On our team, they also have extra training in helping kids with CF.
- Nurses are professionals that can educate you in all aspects of CF care. They help coordinate your care with other team members at your clinic visit and are available by phone to answer questions about your child when he or she is sick or if you need medications.
- Dietitians are experts in nutrition. They can help teach you and your family about the importance of nutrition for a child with CF. Our dietitians can provide information and counseling about infant formulas, vitamins, high-calorie and high-protein diets, pancreatic enzyme supplements and dietary supplements.
- Respiratory therapists are experienced professionals who can help your child with treatments to slow down lung damage and improve breathing. They can also help teach you how to administer these treatments at home.
- Pulmonary diagnostic technicians have training in testing how well your child’s lungs are working.
- Physical therapists are experts in using exercise to help treat illness. Our physical therapists can help your child improve strength, flexibility and aerobic capacity.
- Genetic counselors are professionals who help you understand newborn screening results and interpret genetic testing results. They can explain how CF runs in your family and help arrange genetic testing for your child or other family members.
- Social workers are clinicians who can help you and your child handle the emotional ups and downs of living with CF. They focus on the psychological and social impact of CF on your family. Our social workers can also help you access other hospital and community services.
- Pharmacists are trained to prepare medicines for CF. They work closely with your child’s doctors to make sure the treatment are working well.
- Research coordinators help facilitate CF clinical trials at Children’s.
The cystic fibrosis team at Children’s also works closely with professionals from many other specialties, including gastroenterologists, endocrinologists, psychologists, physical therapists and child life specialists. They’re all part of Children’s larger team that’s always at the ready to care for kids and families.
If you’re visiting one of Children’s CF centers or your child is an inpatient at the hospital, keep your eyes peeled for these key players: