Outstanding outcomes in cystic fibrosis care
Choosing where to bring your child for cystic fibrosis (CF) care is a major decision. You need all the information you can get. And you want it in a clear, straightforward form that helps you make the right choice for your family.
That’s why we share our outcomes with you. In medicine, “outcomes” measure the end results of a treatment. They’re an objective way of gauging how good a hospital is at treating your child’s condition. As you’ll see, the CF outcomes at Children’s Hospitals and Clinics of Minnesota are outstanding.
The numbers below help show you how Children’s is delivering quality care. The categories are ones chosen by the Institute of Medicine as good measures of health care quality.
Hitting the mark
Children’s efforts have translated into better lives for our patients. Key highlights include:
- Breathing easy. Children’s rates among the top centers in the country for a breathing test called FEV1 (Forced Expired Volume after 1 second of blowing out) for patients between ages 6 and 17. This test measures the largest breath someone can breathe out and is an important way to check lung health in people with CF.
- On alert for diabetes. We are one of the top performing cystic fibrosis center for glucose screening and are the top center for oral glucose tolerance testing for patients ages 10 and older. These are screenings to test for cystic fibrosis related diabetes (CFRD), a type of diabetes that people with CF can get.
- Successes in CFRD (Cystic fibrosis-related diabetes). We recently participated in a Learning and Leadership Collaborative with the CF Foundation. Here, we developed our own quality initiative to improve our screening for CFRD.
Clinical trials — the path to new treatments
Clinical trials are integral to finding new treatments for CF and a possible cure. We’re active in both and continually rank among the top CF centers for efficiently enrolling patients in both treatment and observational research studies. In fact, Children’s is an accredited site for research through the Therapeutic Development Network. This allows our patients to take part in our own clinical trials — both observational and interventional studies — as well as those at other CF centers around the world.
The reason for research: Improving your child’s life
At Children’s, we focus on research and innovations that make a difference at the bedside. From improving day-to-day quality of life for children and teens, to developing new pain management approaches and adopting cutting-edge technologies, our research is completely kid-and-family focused.
Children’s is engaged in many types of research, including investigator-initiated studies (led by a Children’s clinician), as well as externally sponsored multicenter trials, observational studies and registries.
Research studies are ongoing in all areas of the hospital and clinics, but read more about cystic fibrosis research below:
- “Bordetella bronchiseptica in a Pediatric Cystic Fibrosis Center.” Journal of Cystic Fibrosis. September 2013.
- “Increased Adherence to CFF Practice Guidelines for Pulmonary Medications Correlates with FEV1.” Pediatric Pulmonary. August 2013.
- “CF versus CRMS: Diagnostic Challenges in Cystic Fibrosis.” Minnesota Medicine. October 2012.
- “Comparison of Quantitative Sweat Chloride Methods After Positive Newborn Screen for Cystic Fibrosis.” Pediatric Pulmonology. August 2012.
- “Inhaled Hypertonic Saline in Infants and Children Younger Than 6 Years with Cystic Fibrosis. The ISIS Randomized Control Trial.” JAMA. June 2012.