Education materials and other resources
We know you may want to dig for more information, so we gathered these easy-to-digest materials and resources from pediatric organizations in Minnesota and beyond.
Patient and Family Education Materials If you need quick, clear info about a kids’ health topic, we have it all!
Cystic Fibrosis Foundation This organization is dedicated to providing families with support and information about recent developments, research and clinical trials, and legislative action.
Cystic Fibrosis Foundation – Minnesota / Dakotas Chapter Minnesota’s local CF chapter also provides families with support and information about recent developments, research and clinical trials, and legislative action.
Watch presentation: Transitioning to the adult cystic fibrosis clinic
Watch presentations from the 2021 CF parent & caregiver education day
Our Cystic Fibrosis Parent/Caregiver Education Day, held in October 2021, featured information about new treatments and therapies for cystic fibrosis and ways to help manage other related health issues. You can watch the Education Day presentations below.
Cystic Fibrosis Center Outcomes With New Modulator Therapies
Dr. John McNamara, Cystic Fibrosis Center Director.
What do the results of my throat culture mean?
Dr. Brooke Moore, Cystic Fibrosis Center Co-Director
Mental health issues in children and adolescents with CF
Tamara Vance, Cystic fibrosis social worker
Constipation and Cystic Fibrosis
Dr. Pamela Puthoor, Gastroenterologist, MNGI Digestive Health
Nutrition in the Age of Modulator Therapies
Caitlyn Talbert, Cystic fibrosis dietitian
