Education materials and other resources

We know you may want to dig for more information, so we gathered these easy-to-digest materials and resources from pediatric organizations in Minnesota and beyond.

Patient and Family Education Materials If you need quick, clear info about a kids’ health topic, we have it all!

Cystic Fibrosis Foundation This organization is dedicated to providing families with support and information about recent developments, research and clinical trials, and legislative action.

Cystic Fibrosis Foundation – Minnesota Chapter Minnesota’s local CF chapter also provides families with support and information about recent developments, research and clinical trials, and legislative action.

Watch presentations from the CF Parent/Caregiver Education Day

Our Cystic Fibrosis Parent/Caregiver Education Day, held in October 2021, featured  information about new treatments and therapies for cystic fibrosis and ways to help manage other related health issues. You can watch the Education Day presentations below.

Cystic Fibrosis Center Outcomes With New Modulator Therapies
Dr. John McNamara, Cystic Fibrosis Center Director

What do the results of my throat culture mean?
Dr. Brooke Moore, Cystic Fibrosis Center Co-Director

Mental Health Issues in Children and Adolescents
Tamara Vance, Cystic fibrosis social worker

Constipation and Cystic Fibrosis
Dr. Pamela Puthoor, Gastroenterologist, MNGI Digestive Health

Nutrition in the Age of Modulator Therapies
Caitlyn Talbert, Cystic fibrosis dietitian

GET EDUCATED

At Children’s Minnesota, we know how important reliable information about conditions and illnesses is.