Rare disorders clinic
Children’s Minnesota offers a rare disorders clinic for children with an undiagnosed condition. Each month we bring together a multidisciplinary team of experts to review a child’s medical record to help determine what additional tests might be recommended to find a diagnosis and treatment options. Often times, families have been on a diagnostic odyssey going from one specialist to another without an answer.
With the largest team of genomic medicine and pediatric specialists in the region, Children’s Minnesota brings together appropriate experts along with primary care providers. We take an organized approached to coordinate visits with specialists and any additional tests to avoid inappropriate, costly and ineffective treatment.
To be considered for a case review in our rare disorders clinic, families should contact their primary care provider to make a request on the child’s behalf.