Education materials and other resources
We know you may want to dig for more information, so we gathered these easy-to-digest materials and resources from pediatric organizations in Minnesota and beyond.
Patient and Family Education Materials If you need quick, clear info about a kids’ health topic, we have it all.
Basic approaches to decisions This brochure guides you through the information you need to make difficult decisions during this challenging time.
Decision-making with teenagers Find out how you can face these difficult decisions about life, treatment and death together with your teenager.
Including children in decisions Read about how you can involve your child when making decisions in an age and developmental-appropriate way.
Medically provided nutrition and hydration Learn about the discussion surrounding medically providing nutrition and hydration at the end of life.
Allow natural death and do not resuscitate decisions Understanding what these terms mean and what’s right for your child can help your family make the best choice possible should you need to.
Thinking about organ transplants Could this be the best decision for your family, if the time comes?
Developmental considerations for conversations about death. Considerations about how to include children of different ages in conversations about approaching end of life.
Recommended books for children grieving the death of a loved one. What to read together after a loss.
Further links about our program:
- Short Movie: LittleStarsFilm ‘Kali’s Story – Beyond the NICU’: This amazing pediatric palliative care short movie (7 min) features 8-year-old Kali’s journey at Children’s Minnesota from NICU to today, receiving care by the Pain & Palliative & Integrative Medicine program while inpatient, in the clinic, and at home.
- The New York Times (Dec 16, 2015): Essay by Dr. Stefan Friedrichsdorf “When a Baby Dies”
- Video: Kiran Stordalen and Horst Rechelbacher Pediatric Pain, Palliative and Integrative Medicine Clinic Tour
- “Children’s Comfort Promise: Doing everything possible to treat and prevent pain.” Eliminating needle pain in children (Feb 2015)