Caring for kids wherever you are
When it comes to receiving palliative or hospice care from Children’s Hospitals and Clinics of Minnesota, location is no barrier. Nearly every visit with a Children’s palliative or hospice team member begins with a physician referral if your child’s doctor thinks he or she could benefit from palliative care services.
Where that first—and subsequent—visits take place depends on where your child is located and how he or she is feeling:
- If your child is being treated at the hospital, we’ll be at their bedside.
- If your child is at home and able to go to school, as many of the children who receive palliative care are, you can schedule visits at our outpatient clinic in Minneapolis.
- If your child is too sick to leave home and located within 30 miles of our Minneapolis and St. Paul facilities, our home care team can come to you.
Most consultations with the pediatric advanced care team begin with a physician or nurse practitioner medical assessment. We get to know each child, as well as his or her illness and symptoms. We then devise a plan to meet your family’s needs. This may involve additional assessments with a social worker, psychologist or specialist with the interdisciplinary pain clinic. Perhaps your child may benefit from therapeutic massage, physical therapy or music therapy. We’ll arrange it all for you.
Preparing for a clinic visit
If your child’s care journey starts at the clinic, knowing what to expect helps make the first visit less stressful. Before the visit, talk about it with your child. Show your child a photo of the doctor from our directory.
To help us complete initial paperwork and concentrate on your child’s care, it’s best to arrive about 15 minutes before your scheduled appointment. That way, we can zip through the registration and insurance process (remember to bring your insurance card and co-pay) and concentrate on what’s most important to us—talking with you and taking great care of your child.
You deserve to be cared for, too
We don’t just treat children. Palliative and hospice teams take care of your entire family and beyond. Parents have access to our chaplaincy, social workers, psychologists and more. We’ll spend time helping you and supporting you through this journey. Our child life specialists can pay a visit to your child’s school and explain to classmates, in an age-appropriate way, what’s happening with their friend. We’ll work with siblings who may be struggling with what their brother or their sister is going through and help them along the way.
We want to make sure you know you can pick up the phone in the middle of the night and someone will be there to help you. We’re by your side every step of the way.